Cortisone injections are often used to treat orthopedic problems. By decreasing inflammation, a cortisone injection can be a powerful treatment for many conditions. Many people are concerned about cortisone injections and wonder about the side effects of this treatment.
Please share your experiences and findings and don’t forget to include your sources as well. Try to be as objective as possible and be nice to each other. Please don’t use your real names or anything that can easily identify you.
kenalogneveragain 
Shot in shoulder :: Had shot on the 4 of February 2016. At 630 pm .. pain ..and pain after .. sharp and dull .. numbness in hand and tingle .. around 1 am red face and hot to touch .. 6 of February 2016 .. 6 am. Face hotter and redder ( like a sun burn even the swollen skin a bit ) arm and down to Hand still hurting and sharp sudden pain as well as continuous dull ache .. also heart is beating diffently .. no head ache as of yet.. and from day of shot I have felt nauseated..
That’s 3 days ago! Did you go to the ER or doctor’s……if not you need to get immediate med. attention!
Welcome to the Kenalog’s victims club. We still waiting for the class action suit against this criminals that are supported by the AMA and legal system till now. We are hundreds if not thousands of victims with all kind of symptoms that are dismissed as crasy lunatics but with same symptoms.
Anybody know how to go about getting a class action suite started?
Forget it…..too much money on the other side!
Let’s not think about money or any compensation for all of our suffering just yet.
We all need to make other potential victims aware of the destructive side effects of all of these life changing injectable steroids.All of us are living proof that there are physical and neurological effects that in most cases are irreversible. Tell anyone who will listen.I am the proof ,just as you are!.when we all get together ,someone will listen to us,then we can gather our medical records and the horrific consequences we have experienced and stop these pharmaceutical companies from destroying lives and laughing all the way to the bank ,without any investigation into what we all know is happening. We have to start somewhere ! I believe we can all get together on this and be the beginning to the end of all of this suffering!!!
Seahorse724@comcast.net
I’ve had 3 separate Doctors tell me my neurological problems were due to my cervical and lumbar epidurals of the toxic Kenalog…. Then they found out I was involved in a lawsuit and all 3 completely retracted everything they said. No Doctors are going to go against another Doctor for use of Kenalog because they make soooooo much money off of it and they can use it any way they see fit or “off label” regardless of all the warnings not to do epidurals. The FDA just decided in November of 2015 that they weren’t even going to make the warning labels stronger or make it so Doctors had to actually tell you what they are injecting into you and that it’s not supposed to be used for that reason… They can do whatever they want if it means more money in their pockets. It doesn’t matter that it’s banned in 3 other countries. So all you can do is do your research before you agree to any procedure or injection and tell everyone you know because it could save their life. I’m just passing my second year of loosing everything because of this toxic drug.
Good day Krystie, I have had the exact same reaction from at least five different, supposed doctors. Look you rite in the eye and deny any knowledge of these deadly reactions.
Bristol myers squib a large producer of injectable steroids, has a Web site describing the harmful reactions to look for and to make your health care provider aware you are experiencing an adverse reaction from the injection. We need to go after the pharmaceutical companies first and then the vendors of this poison. I can’t do it alone as my entire life has been affected. We can either ,let them walk away or have them made responsible! And make the public aware.
This past year the pharmaceuticals and health industry supplier companies had 1360 lobbyists who spent $235,000,000 on OUR representatives in Washington DC. Now….tell me who’s going to win the war on banning cortisteroids…..it’s not us!
I completely agree they shouldn’t be able to just get away with it. After almost 2 years of trying to get my medical malpractice lawsuit going I’m giving up because you can’t do anything unless you get a doctor to testify in court that your problems are due to Kenalog. It’s unreal the amount of people this has effected and they are still allowed to use it. Doctors are allowed to use any drug as they see fit so the warnings don’t mean anything. My lawyer agreed that it should be pretty black and white that if it right on the label to not use it for epidurals (it’s only intended for deep tissue injections) but the warnings don’t matter so this will just continue. People are to trusting of their doctors and need to do their research no matter what drug is being injected or done to you.
People who know my family and know the hell kenalog has put my wife, daughter, and me through still take the shots, regardless of what we tell them. Yes, people are way too trusting of their doctors. They don’t even bother to do any research online…..just blindly take the shots. If enough people take the shots and have side effects, look at the massive amount of money the doctors make treating just side effects! They will make more treating the steroid side effects than the original problem the steroids were used to treat. That’s a win…win for the medical community. I know they got a ton of money from me for treating my family’s side effects…..way more than the “seasonal allergy” kenalog shot paid!
Everything being said here is 100% correct none of these Dr’s will ever admit to anything. I went to my DO’s superior and he agreed with me that the injections caused the atrophy etc. then told me to get an attorney. when I did the attorney called him and he hung up on him and then told me I was never allowed to be seen in their office again. The DO. that I had seen was on probation for over prescribing narcotic drugs etc to female patients, caught having sex with patients and also staff members. when his lisc. was suspended he got caught working a deal with one of his patients to get money from a real estate deal. (felony charges were dropped) now he has to have a babysitter in order to practice. I found all this out after I decided to do a back ground check on him abt 6 months after the injections that he gave me. So these are the types of people we are dealing with sometimes. Criminals in more ways than we can imagine in some cases. Everything I found on this man was in our local papers and the medical board records and this s.o.b. is still practicing. he is not allowed to be in a room alone with women and there is suppose to be a sign up warning female patients about this man. well that was taken down when they remodeled the waiting room and was never put back.(how convenient) complaints were made but nothing done. So what do we do? I have gone to so many dr’s trying to get well and like Dick said it has not been cheap! I still go to physical therapy after 31/2 years, One dr. I went to wanted to give me a injection in my spine to get rid of the pain and symptoms that the injection caused!!! what a bunch of dumb arses. I too have warned people and some go get injections anyway. Like I said until they mess up some celebrities life through these injections nothing will ever be done. I am trying so hard to move on with my life and focus on the positive changes and although they are slow coming and may never be 100% I am better off than I was the first 21/2 years. Who knows maybe someday the FDA will pull their head out of their arses and listen to us. I can only imagine how many people have actually died from these drugs and nobody even knew what caused it? anyway thanks for listening to me rant. I could go on forever about this crap! I now do back ground checks on all my dr’s and also research drugs for side effects. right now I dont take anything because of fear.
I understand were your at with this ,I’m trying to deal with both the physical and psychological damage and I’m sure you know it’s not easy.Im going to keep gathering as much information I can ,and keep trying to see what law company is ready to fight for us all.
The lobbyists can donate 235,000,000 a year to our federal representives, but when we contract a Law firm with the integrity to do the fight for the many that can no longer stand up against insurmountable odds , We will seek Billions in damages and hopefully put these uncaring murders in jail.
Feel free to contact me @ seahorse724@comcast.net. keep the fight for justice alive .
Just noticed the other day that after two years since the kenalog shot my muscle mass is starting to come back….lower glutes were in bad shape…almost gone. When I would sit down it felt like I was sitting on bone….no muscle. Now, after many hard workouts they are starting to respond and build mass. Maybe someday this hell will all pass!
My glutes started coming back at about 2 1/2 years and although their not quite like they were they do look and feel a little better. I was like you as far as sitting on bone and not just the sits bones but sitting on my tail bone you could see all 3 prongs and it hurt like hell the skin was thin and would tear. I am so glad to be passed all that! it took a long time to get the muscles to fire properly this would come and go for a long time. now I am noticing that some of the bulk stays and doesnt collapse like it did for so long. I’m 3 1/2 years out and just keep hoping that things continue to get better. It’s been a long hard up hill battle but I refuse to give up! my hamstrings are still puny as well and I still have a lot of pain but once again not as bad. My right leg used to be a little bigger than my left but with the atrophy my left leg is still abt an inch bigger as well as the glute muscle on that side. so anyway I hope some day we can all get some answers and the fda recognizes whats happening and put a stop to this so no more innocent people have to suffer the way we all have. It’s ridiculous!
Response to AK. Felt like I was going crazy when I would see muscle mass build really well….. then disappear in several weeks. I have never had this happen before and didn’t think of it as a kenalog reaction. I just thought I was imagining things. I’m having trouble right now, no matter how much I lift, my biceps aren’t responding as they did a while back.
well I can tell you your not crazy and my p.t. has noticed and made records of this as well. It will go on for a while, expect it but in time it will start staying longer and will eventually come back (keeping fingers crossed) my glutes are holding up much better now I still use a tens unit because it does seem to help the nerve to regenerate which helps the muscle to fire. I have also been taking creatine and this also seems to help no magic overnight bullet, its gradual. I am hoping within another 6 months the muscle will be back to at least 75% or more. I have to say tho that this taken a lot of very hard work, have had to work through so much pain and disappointment and the hard thing for me was also feeling crazy about the muscle inflating and deflating but like I said mine has gotten better and I hope and pray yours will to. we seem to be on the same path time wise as far as seeing things starting to wake up. we just cant give up… I have never worked so hard for so long to get such minimal results but as of now I can see some light at the end of the tunnel but once again we were very athletic before this happened and I think that has been a plus for us as far as knowing what to do for ourselves. I just can’t help but feel so bad for those who do not have the the strength or stamina to do what we are doing and it’s not their fault. None of us should have ever had to go through this and if these Dr’s were better educated on the drugs their administering or at least have been more honest with us on side effects and giving us the option to make an informed decision about our health we wouldn’t be hear today or at the least we would have been able to say well he/she did say this might happen and I chose it anyway but as far as I know none of were given that option. So here we are suffering through but I have faith we will make it but it won’t be from any help from them. Hang strong!!! when it feels things have backed up remember that this is part of the healing process and this to shall pass…
oh yeah some days I have to back off the weights some and go light. work towards the pump. I drink protein shakes,creatine,pre workout, and sometimes bcaa’s but right now the creatine seems to helping the most. good luck!
AK…I know the feeling about having to back off on the weight. I will be going along making progress, then my muscles will just be weak for a while. I was stuck at 40 push ups for almost a year before I just recently hit 50. Some days during the last year it would even be a struggle to just get 35. I never knew from day to day where I would be!! I also take protein…usually eat a 25g bar for lunch and another post workout. For some crazy reason I seem to do much better with a banana after lunch….potassium??? I workout around 3pm when I coach distance runners. Never tried creatine…might have to make a trip to GNC.
yes that’s the way I take my protein as well and I do eat a lot more bananas than I ever have. I put them in my shakes etc. the only draw back with creatine that I have found is it can cause some bloating I even stopped taking it because of it but then I decided to just ignore that and get back on it and I have stayed with it now for about a month steady and I am getting some results. It makes the muscles retain water to give them that pump that we have not been able to get and I think over time the muscles will just get used to being full again. It helps with my workouts as far as endurance and a little strength gains so I plan on staying with it for at least another month then break for a bit and try again. I know you have to drink a lot of water when taking it which I do anyway so all should be well. At this point I am ready to try anything lol! I do have to take breaks from workouts from time to time but that also seems to help, it takes longer to recover anymore and I still deal with a lot of pain but what are you going to do? we’re here so we just have to keep on going. I hope if you try the creatine that it helps you and once again good luck! all we can do is keep sharing our journey along with experience,strength and hope in hopes that it will help somebody else. what works for some may not work for others so we have to share in order to figure this out.
one more thing I don’t understand. every time I turn on the t.v. there is a add about class action suites on so many different meds. so why hasn’t anyone heard us? I know I have contacted the FDA several times as well Bristol Myers etc. and I’m sure most everyone here has as well so what the hell??? sorry for the language lately but some days I just want to go off! I still don’t feel like myself, just going along daily in a fog of disbelief with a monotone feeling. None of this makes any since to me at all and not only did these drugs make a whole new set of problems it didn’t help the one I went for. just venting….
Dear AK and Dick.
No one is responding to my mail postings. Could you please tell me what I am doing wrong? My postings do not appear in my email anymore either. I really need some support. Thank you both!
With respect and love …Lea
IF you have not gone to the E.R. yet go!!!! these drugs are nothing to mess with they extremely dangerous! Do not put it off please and dont let anyone convince you that it has nothing to do with the kenalog take as much info in as you can. You may be in for a long horrific ride. Hopefully not but be prepared and don’t let them tell you its in your head Some how we have got to get these people to listen to us people are dyeing or becoming disabled or at the least losing their quality of life due to these types of drugs. Please dont just let this go and stay here with us we have lots of advice and support for you on the road ahead. God bless you! keep us informed,keep a journal eat clean drink tons of water and dont give up!!!
we’re not trying to scare you it’s just that we are concerned due to our own experiences. This has been a horrible journey for all here. we all found this site because of fear and looking for answers and a better understanding of what was happening to our bodies. it’s no mistake that you found us. It is what it is. Good luck, hang in there and stay strong. You may be one of the lucky ones and it leaves your system before doing to much damage. This had been such a traumatic experience for us that I don’t think we will ever fully recover or get past it 😦 but we’re here and we just keep on keepin on….
Hi there have you found any natural treatments that have helped you? I’m 1.5 years out from kenalog injection and still dealing with some things.
Thanks
Rose
I had the exact symptoms after a Kenalog 40 injection in my shoulder. I ended up with A-Fib. Go get checked now! It occurred 24-48 hours after injection. Red sunburn, irregular heart beat, not able to sleep etc. I called the FDA and reported it. They admitted it is a very rare side effect of the Kenalog. Of course you should report it too if possible. We need to get the word out that this stuff is killing us! Let us know what happens. Prayers for you Ivy.
Hi there. I came across here looking for info. I had a shoulder injection Tuesday. My arm went numb for the whole day. I have had injections in my shoulder before but my old doctor barely used any medication. This new doctor not only gave me one big injection but lots of little ones too. My arm was sore for a few days. Friday I used a face mask that made my face flush red and hot. I used it before and it did not have this effect. That night I had a panic attack. Havnt had one in twenty years. Heart has been beating fast too with the panic attacks. Still feeling a bit anxious and that is the only symptom for now. Plus very tired. Will this get worse? I asked my dr what side effects there are as I am very sensitive to medication. He said the only side effect is feeling better. When I told him my arm is numb he said well I guess for you that is a normal reaction. Asshole. I should have gone with my gut and not gotten this injection. My last one was maybe four years ago but never had a bad reaction. I was to start my period Wednesday and now I am late. Not pregnant and no sign of it happening. Uggg.
Tara go get an EKG immediately. I had the exact symptoms. I had no idea I was in AFib. I just knew I felt very anxious and couldn’t sleep, red hot face and numbness in my hand and at site of injections. I had 3 total that day. One in the joint and two on the side of my shoulder. He did not tell me what he was injecting. I did not sign permission or anything. When I called the office a few days later he told me to go to the ER. I did. When I told him what the ER said he told me he would document it and write a letter for Workman’s comp. At the next visit he denied everything and said he never said that. Workman’s comp said this was a previous condition. It is so frustrating. Go get checked out. Your heart is nothing to mess around with.
Thank you Karen. the panic attacks have subsided thankfully, but my period is now 10 days late since this injection (i am always a 28-29 day cycle like clockwork). i am really upset about this as it has caused me to be on an emotional rollercoaster. I feel like i am not even in my own body. My blood pressure, etc. is all back to normal though and no more heart palps. I used to suffer panic attacks 20 years ago so that old feeling came back and it was scary. i have been keeping a journal of all my symptoms and when i see my asshat dr. in 3 weeks i will be printing it out and putting it in my file and will hae him initial my copy as well as the copy in my file. they need to take responsibility. my dr. was already on my shit list for discredting my chiropractors xray he took and his diagnosis.
Best of luck Tara. It is a nightmare. I hope the Doc agrees and will initial those papers for you. Wish I had done that. We trust our Doctor’s and then they let us down. Not good medicine.
he probably wont initial my papers but i will get him or the nurse to sign something. even if i need to have the front office lady initial that she put it in my file. I don’t trust doctors at all anymore, especiaily this guy. arrogant, harvard dr. who is so anxious to write scripts for horrible medications
This is the first day in awhile we are all talking about our suffering, and we’re all upset on how we are being treated! Let’s put our personal knowledge together and find a solution.
It’s always uncomfortable to take that first step. If we can stop 1000 more people no I mean one more person from this nightmare
We have begun to help us all ! Thanks
Same with me. 5 days after the second series of shots he gave me (within 1 week)I was rushed to the E.R. With SVT. Supra ventricular Tachycardia. Heart Rate wouldn’t fall below 250 and BP fell to 50/40. Had to be fibulated. Almost died. Never thought about it until almost two weeks later when no one knows why it happened. I literally forgot about my injections.
Dick & AK, I have a similar problem, in the beginning of this cortisone toxicity, I lost 33 lbs. After one year I recovered only 9 lbs then in this winter I lost one lb. I don´t recovery my weight and my buttock almost disappears. I eat one banana everyday or when I feel starved it made me feel good. Other symptoms that remain are cold hands and itchy on the abdomen. I feel better but no like my old self, sometimes I think I am a old woman. Thank god the depression and anxiety have diminished. Greetings
Miriam,
Like I posted earlier, there’s something to the banana thing. When I have a banana for lunch, it makes my 3pm workout totally different. I can’t explain it. I can’t even explain the feeling. I hate to use the word “normal”…..but I really do feel almost normal again during the workout. Wonder if there’s any professional nutrition people here who might be able to explain it? On the flip side. I used to drink a cup of coffee before workouts. It’s been clinically proven coffee will enhance muscle contractions and enable better athletic performance…..it helped me a lot. Here’s the rub….since my Kenalog shot, a cup of coffee destroys my workouts! My heart rate will not come up to normal aerobic exercise levels and I struggle with breathlessness for about the first 30 min of running. Then, like a switch is flipped, instantly I can get my breath and my heart rate is semi normal. Strange isn’t it?? All of this just since the shot!
Hello I am a 20 year old female with hip bursitis as well as iliasoas tendonitis. I had the shots yesterday (4/19/16) one in my butt and the other in my groin. At first it was very hard to walk as my leg felt like jelly from the numbing agent. I hadthis procedure done at 8:30am by the way. So I am getting ready for classwhich was at 2 but all of the sudden my heart was beating so hard, I could not stop sweating and crying for no reason. It was a hot day but I shouldn’t have been sweating that much. I felt so sick like I was going to puke but I contained myself. Eventually I went to my schools library for some AC hoping it would cool me down. I got sooooooooo cold. Like ridiculously cold. Eventually the anxiety did subside and I was able to fall asleep pretty easy. However I remember waking up about 5am covered in sweat. Now it is 4/20/16 and I feel better however I am having severe temperature flucuations but I can walk without pain so I think I am ok 🙂 HOWEVER I will say, I think the drs that gave me the injection are stupid because I’m bipolar and you’re not supposed to give someone with bipolar a cortisone shot… but luckily I’m on lithium so I think that helped my situation.
You really should go get checked out. Anxiety and cortisone “flush” are symptoms that should not be ignored. Especially the heart beating fast. I had some of the same symptoms and ended up having A-Fib which is a very rare side effect. Please get it checked out immediately. I had to be cardioverted at the hospital and have heart ablation surgery for it to go away. I reported it to the FDA as it is one of the most rare of the side effects. High blood pressure as well and a fast heart rate. good luck.
I mean.. I’m poor so I don’t want to go to the hospital unless I have to. How do I know if it’s serious enough to go?
If you feel like your heart is beating out of your chest or you feel palpitations you should get checked. It may also feel like your heart is racing. If you feel hot like a sunburn that is a Cortisone flush. Look up the side effects. I am sure there are people on here who can tell you about their experiences as well. No one believed or believes me. It is a nightmare.
Luckily after a few days all of my symptoms subsided and I now able to walk pain free now 🙂
So happy for you! You are one of the lucky ones 🙂 I am almost 4 years out now well august will be 4 years and although a lot has changed for the better there are still some symptoms from nerve damage that I am still dealing with along with the atrophy. My muscle holds for awhile then flares and collapses.It doesn’t go away totally like it used to but still very disappointing at times. Night pain is the worse! I have had to work twice as hard as I ever did just to see some small changes over time but I just keep going. I used to workout because I loved it now I workout because I’m afraid not to. I still love it it’s just that my reasons have changed and I don’t get the results I used to. My body does not respond the same anymore. Very frustrating but I’m still here and I’m glad you didn’t have to go down this road. I am happy that I have my strength back because having that makes me feel that over time I may get back close to where I was. Keeping fingers crossed.
AK,
The question that keeps coming to my mind that I can never find an answer for is: Why does a steroid flare cause almost immediate muscle collapse and loss? As you know, I have been fighting this for two yrs+ Is there something with protein metabolism that steroid release effects??? I’m just looking for a semi technical reason for this cycle. It really has had a devastating effect on my training and I know you have suffered greatly as well.
Dick
Dick,
I really wish I had an answer but I don’t and I don’t think anyone else does either and if they did I don’t think they would tell us, that would be admitting theres a problem and they can’t have that. They believe in what their doing just like they believed that penecilin was the cure all back in the day. I just keep trying different things to see what works. My p.t. has been very encouraging and supportive in that she reminds me that I have a lot more good days than bad now and there is some definite positive changes happening. will I ever be the way I was before kenalog 40/ marcain? only time will tell. I can tell you this tho, I have to work twice as hard with a lot heavier weight than I had just to get small results( heavy for me) and I am no spring chicken so now I wonder at times I’m I hurting myself by working so hard? oh well vicious cycle… I do feel things are getting better just not fast enough for me and the set backs are devastating. Hopefully some day somebody will listen. I cant believe the FDA has not looked into this more because in 2014 there was over 3 thousand complaints to them about these drugs. Anyway I wish I had an answer but I don’t 😦 just have to keep going and trying new things. Hang in there…
Dick,
Just curious are you into bodybuilding? Because I have all my strength back and some new muscle just not anywhere near where I should be for what I am doing and like I said before the flares and set backs are devastating but they don’t last as long as they did but my gains are minimal. Anyway just wondering what your trying that’s different than what you did before this happened.
AK,
No, I’m not a body builder. I am a lifelong distance runner, running coach, and weight lifter, now in my early 60’s, Before this happened I was one of the best distance runners in my age group in the country…now that has gone to s__t in a hand basket. I have recently been supplementing very heavy with protein even though my guts don’t do well with whey or soy. When I do this it seems the muscle mass tends not to be so volatile. I have also been hydrating to the point of almost overhydration….this seems to help the most with flare control, especially when doing high intensity speed workouts. The high intensity training used to bring on brutal flares and leave me with high heart rate for hours after the workout….now that phase seems to be gone. I almost quit training when that was going on. It still takes tremendous work to achieve minimal gains and I’ve noticed taking several days off really sets me back….way more than before the shot. I seriously doubt I will ever be the runner I was before the shot, but I will die trying to get back there!!
I feel the same way I have told my P.T. I will get my body back or die trying and I have had those moments where I feel I want to give up but then a few days of not working out sets me back also and it is not fun it hurts like h..l I had a bad flare last week and it made me feel I wasn’t getting anywhere even tho I know I am. Its almost like when I have a really bad flare right after that I notice a positive change either in strength or more pump in the glute area. I am not a bodybuilder per say but I feel like I’m becoming one because heavy lifting is the only thing that seems to be making a difference. I do take protein,drink lots of water like you said and the supplements I’m taking right now are Multi v,Fish oil,Glutamine,vit c B12 I eat a lot of lean meats,greens,brown rice etc. My P.T. does a lot of fascial release and trigger point release it used to hurt so bad I wanted to scream and cry but now a lot of that has gotten better. I feel it has helped more than anything if you can bare the pain of getting through it ha! I am not as stiff afterwards and I can feel the blood rushing into those areas it feels so good! I have learned to do it on myself. sometimes I use the thera cane and the tens unit has been my best friend also. it seems to wake the muscles up and make them work. I really feel it helped with healing the nerve and activating the muscles. I now feel my glutes working again and some sz has returned. My ham strings are still kind of puny on the right leg but I am starting to feel them to. I feel that if all goes well maybe I will see a major change in them as well in another 6 months or so. I seem to see a change about every 4 months or so. Hoping that now the muscles are really firing maybe things will start moving a little faster. I really feel that weight lifting and soft tissue work,proper nutrition,good hydration,and supplementation are key here and we have to do it everyday for the rest of our lives… Keep on truckin 🙂 does that give away my age? Lol!
one other thing I do I take a half does of pre-workout drink about 20 mins before working out and it does have a little creatine in it. It helps me with endurance and stamina and a little bonus pump. I just feel I can do more when I take it. So far no problems. Now when I take just creatine I get the pump but I also get a lot of bloating and I don’t like that so for now sticking to the walmart cheap brand of pre-workout 🙂 oh the reason I only take half dose or less is because I tend to get a little shaky caffeine? anyway just to let you all know what seems to be working for me but I would ask my dr. before taking anything like this. It would be nice if everyone would share what works best for them because there maybe something that may work for others as well that we haven’t tried yet. I know at time this sh-t gets old and we get tired of talking about it and living it but it is what it is…
I’ve never tried a pre-workout supplement. What I’ve been doing is eat a protein bar, (20g.) and a very large glass of water about 30-45 min. before my woekout. I used to drink a cup of coffee before workouts, but now, since the steroid shot, caffeine seems to have an opposite effect on me. It actually slows my heart rate down and I get out of breath….so strange. I always wear a heart rate monitor during workouts; therefore, I can see sharp aerobic differences pre steroid vs. post steroid. I think more and more that hydration one of the keys to recovering from this poison.
yes I agree about the hydration. I usually eat a good source of protein like eggs with either oatmeal or brown rice pre workout along with the pre-workout 20 mins before or I will drink it during my cardio warm up. I will also at times take a shake to the gym with me on leg day because I’m usually there for awhile and it seems to help get me through. I really do notice a difference in my strength and endurance when I take the pre workout drink. Its not very expensive and I dont take the full dose and that seems to work for me.
AK,
If you don’t mind saying, what is the name of the pre workout drink from Walmart. My wife goes to Walmart almost every day and could pick it up. We both work out and she might like it as well.
Thanks,
Dick
Dick,
The name is Body fortress super NOS blast elite pre workout intensifier. Its by the pharmacy at my store along with the protein shakes etc. If you try it I would suggest starting with about half dose or less just to see how you both respond and then maybe work up if you need to. I do pretty good at half scoop. Good luck with it and and let me know you all like it.
Dick, There is another one I like as well it’s called ON amino energy I like the orange flavor its really good, a little more money but you can find it on sale once in awhile. Anyway hope this works for you I know you said your wife and daughter are suffering as well from this crap so I really wish your family well… I’m trying everything!
AK
Thanks, I will try to get some at Wally World in the AM for my afternoon workout. Will let you know how it goes
Yesterday I ran a 5mi. very difficult hilly trail….it was a great workout…good energy, heart rate came up to fairly normal levels, and ran sub. 8min. miles. Last night I started the typical steroid flare itching bumps on my legs. Today’s workout was an aerobic/muscle strength disaster. No strength, out of breath, simply terrible for 45min. This is the crap that happens since the shot!
It’s kind of funny. On top of everything going on with the steroids, some idiot on the trail today, out of nowhere, threatened to beat me up…..first time in 40+ yrs. of running! The guy was on some kind of drugs…totally out of his mind!
Well…I’ll be back at it tomorrow!
Geez! crazy people in this world they know no boundries and have no respect. I know what you mean about having a really good day and then it going to pot the next it’s so depressing:( I sometimes just take a day or two off when feeling really weak because I wonder if I’m over training for fear of not doing enough ha! I hate the fact that I don’t know my body any more, It doesn’t do what I feel it should do. I used to be able to see a weak part and be able to correct it but it just seems to have a mind of it’s own any more. I just keep trying different things and I do feel that mixing it up a bit does make it have to work a little harder to promote change. I guess it’s the muscle confusion? right now I’m getting ready to go on a cut because I bulked all winter thinking that it would help to get stronger and put some weight on which it did and I can tell a difference but I ended up with a lot of belly fat along with it and that is something that happened with the shots I had really bad fat distribution so now I have to figure that out argghhh! I get so upset at times. Things that used be a no brainer are now so freakin complicated. oh well just keep on going, see what happens. I can’t believe that guy threatened you. People are scary these days.
P.S. You really dodged a bullet! Please don’t forget others experiences here or the fear that brought you here because it is all very real and we need to let others know the chance their taking if they consider these types of drugs. Once again Sooo happy for you!
I would suggest going in and being checked out. report all symptoms and keep a close eye on every change that you may experience because for a lot of us here the symptoms changed and continued to get worse not better over the next few months and up to a year or more. That was just the beginning of a horrible experience. One more thing DO NOT let the Dr’s blame your anxiety or anything other symptoms on your bi-polar disorder because they will try to make you feel that you are just emotionally out of control which is B-S anyway good luck to you and keep us updated on whats happening with you. Hopefully you will be one of the lucky ones who’s life doesn’t get turned into a living hell!
You have to help yourself, everyone on this site will gladly offer advice ,it seems as much as there are many with similar symptoms,everyone is different in the severity of this flat out poison. I was told the pharmaceutical companies are paying so called doctors to shut up and fall in line. I have called lawyers in the hope they would help us,none of them will even return your calls. I don’t want there money, I want to stop the manufacturer from destroying people’s lives.
I agree with you 100% its not about the money and this site is about supporting each other. I would give anything to have my life and body back the way it was. All we can do is keep at it and hope and pray for the best. I seem to have hit a stall lately and I have noticed that if I miss going to the gym or just cant workout for a week I see things going to crap real quick.it gets really frustrating at times. Don’t even get me started lol! I just wish that they would listen so others won’t have to suffer. Has anyone sent in pictures or medical records to FDA? just curious… I go back and forth with sending them pix. Not really sure if it would help.
Hello, I am a 33 year old female from San Diego. About 3 months ago I had severe case of calcific tendonitis that was triggered by strep throat. I was in extreme pain and the doc decided to inject me with cortisone and anesthesia. I had no idea what cortisone was and was willing to try anything to relieve the pain (It felt like childbirth again; thats how bad the pain was!). I was happy and relieved for about a month or so when I noticed that the color of my urine was suddenly green! I had also missed my periods and when they did arrive, it went on for two weeks. After that I bled every 10 days. I became insomniac and was extremely tired. I decide to go to the doctor who assured me that all this had nothing to do with the cortisone shots. She instead made me take a host of tests and concluded that my prolactin level was elevated (why was it elevated well she doesn’t know!). I had to take an MRI to rule out brain tumors. I was also found to be pre-diabetic (I have no family history of diabetes) and my iron levels had dropped to the lowest possible level. I met with the endocrinologist who turned out to be the biggest a-hole and dismissed everything!!! I am now going to contact my aunt who is a doctor to get recommendations on who to meet. I am just looking for a doctor who will believe me.
Mila,
One problem we have with this drug is that it can over time keep getting worse before it slows down and if we wait to long to let them know they tend not to believe us for me it took me down immediately then continued to get worse and worse. I could barley walk for 4 months,anxiety thru the roof,calves swelled and turned black from bruising, lost muscle strength to my bladder,suicidal thoughts,loss of appetite this list goes on and on. I would fall down and just lay there and scream and cry because I didnt know what was happening to me. they ran an mri on me as well looking for ms,als,gillian barre syndrome, and a multitude of other tests so what else could it have been??? oh yes I ended up in a diabetic range as well the whole experience was and still is hell. Good luck with your Aunt if you get any answers at all please share. We’re all here just trying to support each other and maybe learn something from all of this. Once again I beg all of you to keep contacting the FDA we can’t drop the ball on this there are to many people out there that will continue to have their lives destroyed with this drug in the wrong hands.
Hi Everyone. I am one of you. Still with symptoms of rising heart, glucose levels up and down, muscle loose, anxiety periods, fatigue wioth no reason, achy bones and over all a feeling of being 75 years old when I’m 55. Please keep writing to FDA, congressmen, White house, AND ALL POSSIBLE TV AND RADIO STATIONS. We need to speak out. I did write to Sen. Sanders and Hilary Clinton about Kenalog and chemtrails, now I am so much in the look out for toxines in the environment and chemtrails is a very much real poisoning of society. Please you tube it to see all the local and international scientists and military personnel confirming it.
Sorry to hear your still having problems Armando. We can all relate to your pain and suffering. Have you gotten a response from any of these people you have contacted? if so what did they say? I really feel we need to keep on the them. The squeaky wheel gets the oil 🙂
AK….Went to Wally World and purchased the Body Fortress “Super Advanced NOS Blast” pre-workout amplifier.
Here’s the scoop,(no pun intended). I took 1/2 scoop in water about 30-40min. before my workout. This stuff actually tastes very good! I biked one mile to the trail. Heart rate when I got to the trail was 120 b/min. This is what I’ve been seeing the last two yrs.(post steroid)……no change. During the workout my heart rate would not come up to my pre-steroid 75% (147 b/min.). 147 b/min is where I used to easily run 6-8mi. pre-steroid. At 143 b/min. I was totally out of breath and had to back off to about 137 b/min for the first two miles. At the two mile point I was able to go to 144 b/min without being out of breath and sucking for air for the last 3.5miles. This is essentially what I’ve seen since the steroid shot……no change today.
Now, to be fair, I need to repeat this again tomorrow with better hydration in the morning. Today was not the best for hydration; even though, I did hydrate well during lunch and early afternoon.
What I did notice after my running workout…… I was able to bike fairly hard approx. five miles without any loss of energy or breathlessness….that was amazing! At that point I was not monitoring my heart rate so I have no data.
Will try it again tomorrow with better AM hydration.
Dick
Dick, I really hope you see some positive changes in your blood pressure. I have always been a little low and I do not check it very often. Maybe I should just to see where I’m at. When I take the pre-workout I notice that I tend to lift a little heavier and I can workout longer. I am glad to see that you had a positive experience in this area as well and yes it does taste pretty good 🙂
oops heart rate lol
Hi all!
It’s crazy to find so many people dealing with these issues in one place. It seems like it is impossible to find any answers!
My name is Krista and I am a 25 year old female. Last year my doctor tried to talk me into getting the shot for knee pain. My knees have never been the greatest but an injury the year prior made everything worse. I was diagnosed with a bakers sore or whatever behind my right knee by a different Doctor and it was suggested that I get an mri to look for anymore extensive damage. I never did get around to it and the pain persisted. So the first time my new primary doctor suggested the shot I declined. The next appt with the pain becoming more consistent he brought it up again. I was skeptical so he told me that I was young and healthy and there really weren’t any bad side effects associated with it. I signed a generic minor surgical procedure consent form. He injected the needle directly below the inside of my right kneecap. I don’t remember much about what happened the days/weeks following but I do remember that the shot hurt like crazy (this is coming from a girl with 11 tattoos) I’m pretty sure parts of my leg started spasming and it felt like he had the needle in the for forever. I also remember there being a bubble of the fluid under my skin and was told it would go away after a few hours or days and it did. If I remember correctly it did hurt for the first week or so and I was also just super angry all the time. I am on medication for depression and anxiety (Wellbutrin, buspar, and Vistril) I also take medication for ADD. I was never told about any connection or risks about receiving the shot while on certain medications and obviously my doctor knew I was taking them. I have always brushed off medical stuff as nothing because of self doubt and I’m just a paranoid person in general so I try to just play things off. I really didn’t think that any of my random symptoms could be connected.
So since the shot I’ve noticed an increase in anxiety and depression (I won’t even answer my phone anymore) I feel disconnected from everything. I can have entire conversations with people and not remember anything. It feels like my body can not regulate it’s temperature I’m always back and forth between hot and cold (I’ve been in the high 96 range) Also just general confusion and brain farts forgetting words or faces or what I’m doing. Nothing sounds good to eat except maybe candy and chips every once in a while. And I’ve lost 15 lbs which wouldn’t be that big of a deal but I’m 5’4 and currently anywhere between 103-108 pounds which doesn’t sound like enough. I was up to 140 in 2014. I also have little red bumps under my skin. They started on my legs then moved to my arms and chest and face. Like empty zits it’s almost like my hair gets stuck in them and can’t push through my skin.
And now the more serious stuff…
The pain is just getting so much worse. My legs and feet and back always hurt. My shoulder is always tense up trough my neck and just feels like everything is in knots. I’ve always had days or weeks where I don’t sleep a lot but now I can’t even fall asleep until 5 or 6 am at the earliest. When I do get decent sleep it feels like it takes everything in me to get up. On my days off I feel like I can just sleep through the entire day. Im always tired and never feel rested. On the days that I work I’m lucky if I get anywhere from 1-5 hours of sleep. My stomach never feels right. (I’m sorry this is gross) I don’t have many bowel movements but when I do it bleeds like crazy and sometimes it looks like there’s little chunks of fat. I have chest pain almost everyday (it’s almost like it travels from the middle out straight down my clavicle.) I’ve had a few days where I’ve almost went to the er because I’ve thought I was having heart attacks (one episode lasted for 5 hours) (I do drink a lot of caffeine to try to combat the sleepiness. And heartburn meds and things don’t help at all)
I’ve been sweating a lot and my hair seems to be growing crazy fast.
It’s hard to even convince myself that any of this is connected or could be a big issue.
Now the fun part.
A few weeks after the shot I noticed a dent starting to form in my leg at the injection site. Since then it has continued to grow. I saw my doctor in February and mentioned the growing crater in my knee. I mentioned that since about November my nose has been running like crazy and is always just blood as well as just the fatigue and random pain. I would get nose bleeds about once a week but my nose is always just literally dripping clear reddish liquid. Also I mentioned that I had been noticing bumps popping up on my the back of my neck along my hairline (swollen glands or whatever) he pretty much told me the glands would go down because I didn’t seem to be actively fighting a virus and were probably from stress. He said the leg dent is a side effect and would probably correct itself. He gave me allergy meds and told me to put Vaseline in my nose said me to come back in 4-5 months and sent me on my way.
Since then the dent has continued to grow. Its been pretty big for the last 2-3 months. I tried not to think about it. But I noticed a week or so ago that if I sit for more than 5 or 10 minutes with my legs propped up on something or if I’m sitting on them it will take me a good 3 minutes before I can get up. Everything locks up and gets so painful to move. I have to sit there and move it inch my inch before I am okay enough to stand. The pain in both feet and legs has gotten worse. Around the same time I realized that my crater had now hit the bone. Just straight skin stretched over the bone. It looks super messed up. Looking down on them (while sitting) one leg is normal and pretty straight all the way down however my right leg just goes from kneecap to a huge dip all the way down to my bone. It’s most of the inside of my leg where it would normally only dip in a little bit where the thigh muscle connects on the inside to the lower leg. I can’t even push my knees together to close the gap between my lower legs because the thing is so deep. It’s big calf muscle then nothing but a knee cap and then thigh. It’s hard to even describe. And with all that recently I’ve been getting cluster headaches which has never happened to me before (just migraines) and again every single part of my body just hurts and feels so tired all the time. I’ve had a sore throat that has been very persistent as well. Although I will say every. Single. Person. At work has been sick multiple times with this or that and I have yet to catch anything from any of them (knock on wood) so idk what that means or if it’s related.
I guess that brings me to the freaking out part.
I NEED HELP.
The pain seems to have gotten so much worse over the last few days. I haven’t been sleeping or eating much. And my whole knee just constantly hurts.
At first the it was just really bruised when he put the needle then the dent started and it was white/purple with little red veins and has stayed that way. But alone with the increased pain last night I noticed a little line almost of blood blisters (??) starting to form on the top part of the crater along where it’s straight skin and bone. And it’s been a different kind of pain. It’s been very consistent and annoying but worse than normal and with spikes every few minutes that are just horrible directly in my knee and down the bone. Also today… it’s hard to describe but almost felt like I have stitches right in that area and when walking it would almost feel like it was pulling at them.
Like I said I’ve just been pushing it off as nothing and talking myself out of thinking it was anything serious but now I’m getting concerned. I don’t know if it’s just because I’m thinking about it or what. The spikes in pain really suck but what freaks me out is that it ate through all the fat or muscle or whatever and like now what? Are the red blisters from it trying to finally heal itself? Is it trying to go for my bone or my skin next? And I’ve been getting crazy spasms on the outside of my thigh and behind my kneecap, even a few in my other leg. I’m just really at a loss and I don’t know what to do. There’s some things online about how it can melt the fat and muscle but I can’t find anything about what it does when it actually hits the bone. And most of the articles make it seem like it’s nothing and happens all the time. I don’t want to freak out and get all worked up over nothing. I want to wait and see if it gets worse but the increased pain is making it really difficult. And I also don’t want to wait to long and risk it causing permanent damage (if it hasn’t already.)
I just want some answers. I feel like a crazy person and like my doctors just going to tell me it’s nothing and I’m going to take his word for it. I’m so sick of dealing with this. I just want someone to take me seriously and to actually listen and try to figure this out so I can move on to fixing it. I want to be able to go back to being a normal person who eats and sleeps and isn’t always in pain and freaking out about every little thing. I need to be able to go to work and talk with people and actually be okay instead of just pretending to be. I just want to be able to live and feel alive again. I’m so so tired.
Krista,
My family and I have been fighting similar issues from kenalog for over six yrs. There is no easy quick fix……just time. Eat right, hydrate very well, and exercise when possible. The exercise will make you feel worse, but will get the steroids out of your system quicker.
With the headaches, you need to get your blood pressure checked. Mine went over 190 just after the kenalog shot.
I’m over two yrs out from my one shot of kenalog. The past two yrs have been Hell with many of the symptoms you describe.
No….the doctors are clueless. They don’t even acknowledge there are side effects to steroids.
There are a lot of good people on this site with a lot of experience. Listen to what they say. it won’t be a cure but their knowledge will help you get through this nightmare!
God Bless,
Dick
Dick,
So sorry to hear that your family is going through this as well. It seems so crazy to me and still hard to believe that all my symptoms are connected.
Right now I’m just really worried that it melted everything at the injection site straight down to the bone. It’s been 8 months and now all of the sudden im getting really weird pain in the injection site. AND it was only a single kenalog 10 shot. As mentioned there’s blood blisters that formed in the last 48 hours around where my skin is down to the bone. It’s right under my knee and there has been an crazy about of pain throug my knee and down to the middle of the bone. And also in my foot along with muscle spasms all down my leg. I’m just worried that it’s going to start killing off my bones or joints but like most of you at first I feel like a crazy person! I can take care and deal with the rest later but right now I just want to make sure my leg is okay 😦
Has anyone else experienced fat/muscle “melting” around the injection site? Has anyone else had it actually get down to the bone?
I’m so glad I found this page. I hope everyone is in the process of recovering. I know this is going to be a long and stressful road.
I had a ton of muscle loss all over my body, especially in the glutes. Also, I had some Cushings,(excessive mid section fat) for several months…..that was disgusting. My muscle mass is just now starting to be consistent. I can’t speak about your knee since my shot was in the foot for Plantar Fasciitis. I did get the bumps you describe all over my right leg, which is the side of the shot. They looked like Lymph nodes, and are just now starting to go away. I’ve never heard anything about steroids attacking bone. I’ve read steroids mess up muscle mass because they screw up protein metabolism.
Dick,
The bone thing is listed as a symptom most places. Even with the FDA.
“Avascular necrosis (AVN), also called osteonecrosis, aseptic necrosis, or ischemic bone necrosis, is a condition that occurs when there is loss of blood to the bone. Because bone is living tissue that requires blood, an interruption to the blood supply causes bone to die. If not stopped, this process eventually causes the bone to collapse.”
“Chronic corticosteroid use. Long-term use of these inflammation-fighting drugs, either orally or intravenously, is associated with 35% of all cases of nontraumatic AVN. Although the reason for this is not completely understood, doctors suspect these drugs may interfere with the body’s ability to break down fatty substances. These substances collect in the blood vessels — making them narrower — and reduce the amount of blood to the bone.”
I have an appt set up for Friday so I guess we will see how that goes. I do plan on making sure I get some tests done on it instead of just down playing and acting like it isn’t a big deal which im pretty much automatically programmed to do around drs. I’ll let you all know. I want chronically using them. I mean I have taken prednisone a few times but I only received one kenalog shot. It’s scary to think about how bad this would be if I had received more than one or the higher dose.
As for the skin thing. Were they like little empty zits almost? Like I said they started on my leg about a month or two after the shot and I kept messing with them and before I knew if they had spread all over.
If this could just be a flare up what are some peoples symptoms? How do you know you’re having one and how do I determine that it’s from the steroids?
Its been 8 months and it’s never been this bad before.
Kris,
Yes, I’ve had the “empty zits” and they itched when they would first appear. They were all over my leg. You know the symptoms of a flare by association to activity or any other trigger. My flares were triggered by a rise in body temp due to working out. They would last a day or two and would consist of one to many of the reaction symptoms I had to Kenalog. The skin bumps would take a week or so to go away. Finally I just knew when the flares were coming and “got used to it” These took place for almost two years. I no longer have flares; however, I’m not anywhere close to pre Kenalog condition. At eight months to about sixteen months, I was at my worst…..almost debilitating, both physically and mentally. After that, things very slowly started to improve….remember, very very slowly.
Well I just hit 8 months so I guess I shouldn’t be surprised. I’m glad ur flare ups have finally stopped though!
Saw the dr today. He was pretty baffled. Said he’s only seen this with one other patient before and it was on her elbow. He kept asking me if I did something to it to cause the crater or if I bumped it to cause the blood blisters. I was like yeah I just decided to suck all the fat out of one side of my knee and hit the bone with something hard. -.-
Needless to say the blood blisters are still there, my knee feels like jelly and like its about to collapse, theirs needles shooting up from behind the inside of my knee.. And my doctor was no help. He kept saying it was from the lidocaine and that all it had melted was the fat. But the pain in my knee makes me worry/wonder. He also said it would be absorbed in a matter of days and wouldn’t STILL be causing my skin issue and that its hard to believe the crater is getting bigger because all the meds would be done and gone by now.
Setting me up with a sports med dr. Everything is closed Monday. I hope they can get me in next week. This pain is unbearable. All I want to do all the time is cry. And all I got from him was “take 2 asprin and ice it” thanks dude… I take 5 asprin and it doesn’t do a damn thing. Holding out hope that the sports doc will be able to do more for me.
Kris,
That doc is nuts….my wife had her last Kenalog shot almost 3yrs. ago and still has skin issues she never had before the shot, itching…etc. At first the doc was telling her it was chiggers…..well after six mo of that she just gave up and still lives with it. He was clueless.
This crap lasts forever…I was losing muscle mass in my glutes for months and months after the shot. When I would sit down I was sitting directly on bone…nothing else, no muscle or fat. Like I said before, it is just now stabilizing. I’m back to running 30mi./wk. and building muscle, but for a long time it felt hopeless and many times I felt like giving up, but continued to workout and fight through it.
Hope they MRI your knee and find what is causing your issues.
Kris, So sorry your going through all of this. Good luck with the sports medicine Dr. I saw 2 of them and neither one of them had any answers or a clue as what causes this or what to do about it. It’s so sad that we are here suffering and with so much information to offer about the horrible side effects of these types of drugs that occur in some individuals and nobody wants to listen. I will be 4 years out in august and I fight hard trying to get back to my old self and although I am seeing a lot of gradual changes over the past 1 1/2 years I wonder if my body will ever really be the same. this drug kenalog 40 totally changed the shape of my body muscles are working and getting some bulk but the belly fat from redistribution has left me looking weird to me 😦 but I do have my strength back and maybe that part of it will be the last to change. If there are people out there who have gone through theses horrible side effects and did recover 100% I sure wish they would pay us a visit and let us know what they did or if they had a Dr. on board. Anyway hang in there it does get better. When I was at 8 months I was just getting a little feeling back to my legs. I had to wear tight pants or shorts to support my legs and hips in order to feel them so I could walk.Now I’m back working out and I am doing way better I’m still not me mentally or physically but better. I wish they would just listen and give patients the right to make informative decisions about our health! I was told by an attorney that if I had been a model that made a living from showing off my body then I would have a case! So it’s ok for the rest of society to run around disfigured and mamed. What B.S.!!!!
hey you need to get off all that medication! Try FHU or Roy masters to help you, to be still and know. you got to meditate! that drug is so bad had mine at the end of Oct its now the end of may and still having twitches in my heart that drug is going to kill some one…. But hang in their it gets better and as far as your knee get the MRI if they can’t find nothing wrong drink plenty of fluids and elevate it….
Hi vinny!
What drugs are you referring to?
I’m not actively taking kenalog. I had a single injection anouy a month before u did. The only medication I am taking is what has been perscribed to me for years. Ive been talking baclophen and neurontin for 2 years (which I think I saw someone mention) it doesn’t seem to help much though but I’m on a really low dose so may try taking an extra one to see if it helps me out.
Same with the chest thing tho! Mine just feels super tight and heavy all the time with chest pains periodically. It’s horrible and scary.
I hope you can find peace and your symptoms improve!
Well staying clear from the kenalog that’s a no brainer but baclophen and neurontin you don’t need that cr*p. But I’m not telling you what to do anyway yeah seven months and my chest still gets that grip of death feeling but it don’t last like it did when I first got it. back when I first had that shot I had to go to the ER I have tattoos and even did mx and bmx growing up a pretty tough kid broken bones, lung collapse, ect. but this kenalong was by far the worse you don’t seem to not have it bad as some of the other girls on here you got lucky does your heart pound all fast? followed by the extreme panic attacks? AHHHHH its a nightmare but thanks I’m feeling so much better than back in Oct.. if you want follow me on FB vincent deciutiis.
All the way with you Vinny. I am 3 years away from the 3 injections that change my life and still feeling the dizziness, heart pounding, debility, mind absent, change of temperature for no reason, muscle hardening, insomnia at times with sweating, etc., and improving little by little. Hope one day we find a Law office willing to take our cases and go all the way to the Supreme to stop the bastards making money with this poison.
no joke we need to do that and sue them like I said it’s going to end up killing someone…
AK I feel the same when I try to live life without thinking in this drug and it effects, something happens, tachicardia, dizziness, anxiety. When I do much other symptoms come back: lost weight and gums swelling. I think I developed Cushing´s exogenous, then corticosteroids withdrawal and now my body is more sensitivity to cortisol which is liberated in stressful situations that´s why the symptoms came back. I miss my old life but I´m learning to live in other way. Greetings
I was injected with depo medrol in both knees every three months for seven years. The orthopedic surgeon who injected me did not discuss side effects mom did he montor me as mandated in the state l live. One day l was not able to walk on my left leg, my brain could not make my left hip move. I had been having pain on the right side of my body as well for about eight months from hip to knee, I couldn’t lie on my right side to sleep but didn’t really think much about it and never mentioned it to anyone. The day l could no longer bear weight on my left leg or lift it without using my arms l was so far gone with avascular necrosis that my entire left hip had collapsed and my right hip was dead and collapse and I had begun moving into my right knee. In the area that I live there are no orthopedic surgeons willing to sign off on a medical malpractice lawsuit against the Doctor Who injected me with no monitoring and there are no lawsuits against the drug. 4 years later I’m still having a very difficult time walking on my right leg and the avascular necrosis has seriously affected both of my wrist thumbs and hands there is some concern that it may have moved into those areas. How do orthopedic surgeon done 1 bone density scan a year or every 6 months I believe that I would not have developed avascular necrosis at all, I believe that the doctor would have seen there were changes taking place in my bones. I did not have osteopenia or osteoporosis rheumatoid arthritis or any other type of off arthritis in my body except for in my knees because I was an athlete and had athletic injuries in both knees. The orthopedic surgeon who elected to inject me for eight years rather than replace my knees when I first saw him and begged him to convince me that it would be best to go ahead and just try these cortisone injections as long as we could get me out of bed and keep me moving. I also take oral doses of steroids during this time so that I can work in my yard due to the pain in my knees that need to be replaced. I’m now being injected with request once a year and hope that my bones will become more dense. Unfortunately I am not acceptable to fractures of the jaw while getting dental work a recent bone scan show that I had a recent fracture in the second toe of my right foot. My concern is that I’m going to need additional medical attention as I age I am 59 now and I lie in bed every night while my thumb’s my wrist and my hands ache. 2 months ago I was in my garden and I was unable to make my brain lift my right Lake expecially the hip. I think that it is a shame that in our country people could be injured so seriously as to cause them financial difficulty, severe physical disabilities, I struggle not to limp and try to go swimming everyday so that my muscles are strong enough to allow me to walk without excruciating pain and not trying so hard not to limp. I ask the orthopedic surgeon who replaced both of my knees and hips if he would sign off on a medical malpractice lawsuit against the Doctor Who injected me with no monitoring explain to the surgeon that he practically cried when he told me how severe my avascular necrosis was and now that it was moving into my arms and that he thought that he was going to have to replace my shoulders at some point but he please help me by signing off on a medical malpractice lawsuit. My surgeon looked at me and said no I will not I have to live in this community 2. He walked out of the room without even finishing the review of the nuclear bone scan he just done. He didn’t even tell me that I had a recent fracture of the second toe of my right foot nor did he tell me that the changes in my right and left wrist thumbs and hands appeared to be more than arthritic changes end required additional testing. I’ve called his office twice now to discuss this with him. I was not aware of it until I got home and read the report myself. Has not returned my phone call. None of the attorneys in the state that I live in or Alabama or Louisiana will file a medical malpractice lawsuit against the orthopedic surgeon who injected me. They tell me that it would be a conflict of interest because all of the medical malpractice lawsuits they are filing against other doctors best and their patients to the Doctor Who injected me and if they sued him on my behalf he would not provide them the information they needed to win their lawsuit against other doctors. My statute of limitation on my left knee replacement runs in October of 2017. I stopped taking pain medication after my third surgery. I did have to take it once again recently when I could not get my brain to make my right hip lift thought that was only for a few days I refuse to be a person who has to take pain medication due to the negligence of Physicians and due to the unethical Physicians who are unwilling to even finish reviewing and nuclear CAT scan result with you and try and do something to fix the problem. Oh and I don’t remember if I said the physician who did my surgeries and said no he would not sign off on a medical malpractice lawsuit because he had to live in the community also as you left the room said to me I’ll see you at the next surgery. Heading out walked out of the room so quickly and had I’ve been quick enough to think about it I would have asked him which position he would take had it in his own daughter. I feel like I’ve exhausted all of my resources and have nowhere to turn. If any of you have similar experiences or have access to anyone who actually cares please respond. I am not a victim I do believe in being proactive in my own medical treatment I read side effects of medications when the printouts are available. In the case of the injections I trusted my doctor too much and there was no print-out to read
Sorry you have ended up here, you sound like my twin * so far sue Ann I have exhausted every Avenue of starting or even finding a
Lawyer who wants to go up against ,the pharmaceutical companies or their vendor’s of poison, simply put they have BIG money and all the connections to hold you off for decade’s. Pretty much everyone here is in the same boat.Try to find for yourself whatever makes it easier for you to get through the day.
Exercise ,walk , meditate , don’t medicate!
Keep checking back and I’m sure if anyone has a breakthrough you will see it here.
Never give up !!! I have one foot in the grave and the other on a banana peel, but one day were gonna shut these bastards down. At 59 I’m still tryin, hang in there buddy,Peace*
So sorry for all of your injuries from Kenalog. Avascular necrosis should be a really cut and dry case. Want to give info for anyone else considering lawsuit. Lawyers have expert witnesses who would testify on behalf of your injury. The lawyers can summon/subpoena a doctor who’s seen you, and then they may be legally obligated to provide a statement or testify. Of course a lawyer who is already working with the doctor who injected you is not going to take the case on. Look outside your area for another lawyer. Again, I’m so sorry. Kenalog is evil.
Hey, I am just one more kenalog 40 victim. No reson to repit all symptoms. I thing I just found a miracle remedy to all of us. Look for Allergy Kit in google and you will find a method to help the body to coup with you condition. The last for me was to be borderline diabetic and taquicardia. Fatigue, etc. I found a NAET practitioner in my are but they charge 120 for 1st visit and 60 for any other. So far I put almost 500 in my credit card but Im feeling lot better. I found allergy kit (watch out there are 2 diff web sites, you look what you think is best for you) go for it. I see my feet not red any more, I sleep through the night and have no to chage my sweaty tshirts 2-3 times at night. Etc.
God bless you and all the kenalog victims. Please pass it on to others in need of relief.
Hi all,
I have a question to those who experienced hair loss after injections (telogen effluvium). I had 3 intramuscular injections back in Dec 2014 and Jan 2015. I lost more than 50% of my hair. During the worst months I was losing more than 700 hairs per day. My hair loss seems to have stopped in March 2016 but I noticed several weeks ago that I’m shedding more hairs again (around 100) and most of that are new hairs – short ones which have never been cut yet. I am so tired and devastated… Have someone experienced something similar?
Google or youtube NAET or allergy kit. I just getting better after kenalog shot in my shoulder in 2013. A totl nightmare. It is all related to allergy reaction to the components on it. It is kind of expensive to me bug I could pay thousands more to get well. We were not good candidates for that shot, reacted badly to it and the makers don’t want to take risponsability for it and lawyers and FDA and other gov offices are in the labs pockets. Good luck, please share with others if it works for you. I tryed all other possibld cure bisides cuttinh my arm and nothig worked. I am feelig happy to feel “normal” again and even better that before the shot. God bless you.
Armando so happy to hear your doing better:) it has been such s long rough road for us all. I am also doing a lot better thanks to determination,good nutrition and hard work. I still have pain and stiffness on my hips but things are going along much better. I am now over 4 years out. Good luck and many blessing to you all.
how did this help
Hello- I am a female and in my mid to late 40d .
I worked as a first responder, I was strong, extremely confident for the first time in my life, out of nowhere I was knocked out flat with sepsis from complications of a kidney stone and renal stent placement.
I thought as soon as the stent was removed I would resume my life, actually start an entire new life.
For the last 20 months I have had to go to pain management in taken every type of horrible all narcotic pharmaceutical company’s have come up with, one more pain and found I was violently allergic to.
I had hypogastric plexus bilateral blocks, a pudendal block and I have relief for 3 to 4 days my doctor begin to hate me With a vengeance ..
He was furious because I refused to take the narcotics anymore so he did a pudendal completion I had her leave for a few months when I went back and asked for another ablation he went ballistic I found a new doctor. I absolutely love my new doctor a month ago
He did a ganglion empire block I am mediately had relief except I had a UTI and of course it didn’t stop the pain. Two weeks later I had the same procedure I’m still having pain of a urinary tract infection and I’m growing nothing in a culture.
I have lost my appetite, I crave pickled ginger in sushi tuna rolls. That’s all I can eat or I’ll throw it up. I am running a moderate to low grade fever. My horribly raw, the corners of my mouth have split, it makeseating anything almost impossible.
I am getting sores that look like I have road rash.
If you didn’t know me and I didn’t keep them covered, you would assume, I had been drug across the concrete. they are like scrapes, They look disgusting but what’s worse is when I try to clean the area and put topical anabiotic cream it is excruciatingly painful.
I am having stinging at the injection site, like I’m being stung by a bee or wasp right around the sacrum and coccyx area. I’m having extreme and steadiness when walking and dizzy. My blood sugar has become extremely elavated.
Since I suffer from and kidney problems so, I test my urine frequently, protein ithat it’s being excreted in the urine is at the highest level I’ve never seen it go, my keytones are also at the highest level, my pH, glucose, my leukocytes are showing positive, nitrates are the only thing that’s normal, When I test my urine, I do it properly with a straight cath, so I know I’m not contaminating the specimen with an abundance of epithelials.
Epithhelelials can throw a false + for leukocytes.
I lost 25% of my total kidney function, directly afterafter the stent removal.
I already had taken benzodiazepines and Requip at night.
I was prescribed quite a plethora of medication to try to help with The with drawl I would experience from abruptly taking a horrible schedule 2 narcotic, especially after taking it for over 1 year, and drugs in the same class.
I told the first doctor to take his OxyCotin and stick it someplace dark to put it politely.
I was already seeing a psychiatrist, my job as a first responder I’ll just say was medical and though rewarding, it can really tear you up and it was tiring the hours you’re absurd.
The only reason my psychiatrist and other doctors were willing to allow me to do what I did is because they knew I had a background in medical, even with severe ADHD, I was really good at what I did, even though it was a short lived, I loved it.
I loved it. More importantly I was good at it! I treated my patients without judgment and when they were in my care their life is all that mattered to me.
I always said if I lose the ability to care and treat my patients without judgment or like they were ignorant,or like I’ve seen too many times Mike they were a body but not a human being, It was time for me to find a new job. you and I never judged me patience. I didn’t care for Jed then if they had a drug problem etc. I always said if I stop losing my abilty to feel for my pts, Then it’s time for me to find a new job. Thank you for reading through my rant… I just don’t understand why I am going through this. And why I was taken away and I’ll never be able to do that job again ever. It sucks you raise your children you do the best you can you go to school you do a job that you’re not ashamed of and that they are damn good at the last day you work as the first day lose a patient. Talk about sadness.
The part that really sucks is I’ve gone from caregiver too close to an invalid and almost 2 years. I have put the most poisonous drugs through my system I’ve had the most horrible side effects from a few and it appears that Kenalog may be tearing me from the inside out.
When you go to a new doctor that your medical history and they see that you know medical you know what you’re talking about they automatically don’t like you they want you to be ignorant as hell when it comes to medical and I know most of you are not you can’t be,
Or you would believe it Dr if you told see you oh no that can’t do that to you that’s all BS and we all know it. I just need to know what I’m in for I’m scheduled again in less than a week for a third injection so that’ll be three injections and a six week. They’re so many things I want to know about this drug, and it’s possible side effects that I’m experiencing and being told that it’s not the drug I am periods. At least I’m able to walk but I am still having horrible lower abdominal pain as if I have an infection I’m wondering if it can prevent an infection from being cultured and prevent it from giving a positive result. Or if a week ago and he took two injections and gentamicin which is for Gram – infection if it would grow a gram +.
I never really realized how scary medical care is from the patients point of you especially when it comes to pain management and doctors who think they’re God. Just for an example I took a drug and it causes me to swell it put 30 pounds on me in two weeks,
I am Sulfa allergic to the point it can be fatal.
Two of the main saw the anabiotic’s would be Augmentin or Bactrim. The doctor wrote me a prescription for Lasix to call off all of the extra water. I ran I lived at the contraindication any diuretic that the thiazide if yourself that allergic,
Is contra indicated. There are four more diuretics that are prescribed that are non-fireside said just for those of you who don’t know and don’t believe doctors know everything, they are human and with the way medical care is now, it doesn’t matter if you have insurance or not.
Main symptoms
Mouth feels raw
Corners of mouth are cracked
Stinging at injection site
No appetite
Dizziness
Nausea and vomiting
Unsteadiness when walking
Sores on my legs that are appearing from nowhere, they look like road rash,
Weight loss – not complaining
tearing us or anger issues
acne
lower abdominal pain- pain mimicking the pain of a uti – for those of you who have had a UTI.
I got these blocks because I did not want to take any more narcotics, however I haven’t even been able to decrease them due to some of the things I’m going through that I don’t know if their side effects or what if anybody can let me know if they have experienced any symptoms that are similar. It would be greatly appreciated. Once again thank you for allowing me to vent I feel like I’ve been silence. No one hears me.
Zarah,we hear you,we have all been thru hell.
I can’t tell you to not have any further injections, but you will definitely be doing more harm to yourself and definitely affect your future. (If) I were you ,I believe that I would sever all communication with the doctors you are presently depending on.
Seek help with someone recommended by family or friends. You have alot going on medically and need a very precise diagnosis.
Kenalog will affect your thought process as well as damage you physically. That’s what happened to me, it was a nightmare. Please never give up trying to recover at least some of your former self. I have seen many doctors over many ( years ) and found that you have to ask alot of questions, ( READ ) the fine print on all prescribed medicines and ask for a breakdown of side effects on all injections and get it in writing! . Please get yourself some help,get a second opinion from family and friends, but get help my friend, we all need someone there for us. I will be watching for any future posts from you and wish you God’s speed in your recovery. Your friend always ,Garry *
Zarah,yes we hear you,keep fighting thru this,so many are with you and understand what its like. Sending you strenth.
I hope people are still here. I had a Kenalog-40 injection about 4-5 months ago. I had a night where i noticed severe anxiety and nearly had a panic attack a few weeks after the shot. I didn’t think anything of it. Heart palpitations followed. I am now having severe anxiety at night and often have full-blown panic attacks. I have been trying to narrow down the cause and found this blog. My question is, will this anxiety end? Will the panic attacks stop? Is there anything I can do to help them stop? I am taking Propranolol currently, but this only stops the palpitations…does nothing for the anxiety. I don’t want to become addicted to Benzos so I try to not use them, but after not sleeping AT ALL last night….I’m willing to do just about anything to get some sleep without feeling massive anxiety and panic attacks. Kava, GABA, L-Theanine, Ashwagandha, etc isn’t working. I’m guessing that the Kenalog caused an Adrenal Hormone imbalance? I’m thinking about doing a Saliva Cortisol test….anything else I should test? There has got to be some way to bring this imbalance into balance, at least temporarily, as the body recovers itself.
Hi to All
I’m here to tell you a possible reason to All our symptoms with Kenalog. Low levels of 3 minerals; Lithium, molybdenum and germanium. Right now get in Google and look for them, used in the body. You will see why we feel this way and why we react so strong to Kenalog. Get your hair tested for toxic metals and good levels of minerals. You will be amaze. I have to go very carefully since I’m very sensitive, when they just a tiny bit of lithium and molybdenum and I felt weird and it was a dot. I will start germanium this week. Please , report your findings. Lots of water and Vit D, C and PEMF with a mrs2000.
Sean,
Simple answer, yes the anxiety will go away for sure. All your assumption is correct about the adrenal imbalance, unfortunately that system interconnects to every other hormonal system in your body so the mess the cortisol shot caused is much more complex than a simple test would show. The panic attacks will dissipate by time as well. I can only share my experience, but the severe anxiety lasted 10 month but I’ve heard it took only 6 month for others.
Have you recently checked you BP? Is it low? Did you loose appetite? Are you sensitive to carbs especially sugar? These are all signs for adrenal failure caused by the shot. What a miracle drug.
Nobody in this group were able to find a doctor who acknowledged publicly that the symptoms we experience are definitively caused by Kenalog, although it’s well documented as side-effects.
Nothing I’ve tried worked for the anxiety, I also avoided benzos. The only thing worked is meditation using music that heals and staying outdoors.
I know exactly what you are experiencing now and I can tell you for sure, you’ll get better by time. Hold on, brace yourself. We are a lot stronger than we think.
I’m going to say that it’s absolutely from Kenalog. Don’t expect any doctor to say that though. I’m on year 3 and although I’m better than I was, I still have rapid heart beating to the point I pass out. I’m hoping that this will eventually completely be gone but as for now it’s kind of become normal life and I’ve lost my job that I had since I was 18, I lost my ability to drive by myself and I have to work from home now so it basically uproots your life. Kenalog is banned in two or three other countries and doctors are still allowed to use it in this country as they see fit. It’s not FDA approved for the ways that they use it but they are allowed to do whatever they want to do so from here on out I recommend that any medication, any shots, any procedure, or anything that a doctor wants to do to you or prescribe you do some research on it first and don’t just trust what your doctor tells you. Any doctors going to tell you that there’s no way that Kenalog could still be in your system but this drug is designed for a long lasting life and the side effects are very long living. I had three different neurologist make me feel like I was insane for about a year and a half until I finally figured everything out and I’ll never trust a doctor again.
Sean,
You will get better in time. I’m just 3yrs. out from my single Kenalog injection. While I’m almost normal again, there are a few lingering side effects….tinnitus and itching when stressed are the big ones. When I was at the point you are, I had such severe side effects I thought the drug would eventually kill me. Slowly after the first year things started to turn around. The only thing that kept me sane was lots of aerobic exercise, but be cautioned, anything that raises body temp. can cause side effect flares. It was very hard, with the high anxiety levels at the time to force myself to exercise, but this was vital to my recovery! Hydration and rest are also both critical to recovery. You will get better, but it’s a very long painful road. I didn’t find any supplement, and I tried most of them, to be of long term help. I felt most had a placebo effect which lasted several days to several wks. I also found the more I would dwell on the side effects the worse they would get, and everything would just snowball into one big anxiety attack followed by depression.
By the way, don’t believe anything the doctors tell you about steroids. My wife and daughter have both suffered miserably by these drugs!
All the best,
Dick
Propranolol depletes melatonin and is known to cause insomnia.
MY DEAR FRIENDS, KEN AND . SEAN I HAVE BEEN TRYING TO FIND THIS WONDERFUL GROUP FOR YEARS WE NOW LIVE IN VANCOUVER. PLEASE WRITE TO ME IF YOU CAN, MY HUSBAND HAS ESOPHAGEAL CANCER, AND I ALMOST LOST HIM, HE IS STILL TEACHING EUROPEAN HISTORY ON LINE. HE HAS TO WORK, BECAUSE WE NEED THE MONEY. THE RENT IS 4000.00 PER MONTH. WE ARE IN TROUBLE FINANCILLY, BUT WE HAVE TO STAY STRONG…WQE HAVE TWO BEAUTIFUL CATS THAT WE ADOPTED FROM THE CALIFORNIA FIRES…WE LOVE THEM SO MUCH…SENDINDING TONS OF LOVE TO EACH OF YOU…LEILA AND DAVID EVANS THE HYDRATION SOUNDS INTERESTING, I AM ALWAYS SO DEHIDRATED
Hi Sean, so sorry to hear that kenalog has claimed yet another victim. I also had severe panic attacks due to kenalog to the point of having suicidal thoughts I ended up getting on a low dose 2.5 MG’s of xanax and only took it when I felt I had no choice. I did not want to take those types of drugs either but the anxiety was so out of control it scared me. They did help and I think it was only a few months after that maybe longer that the anxiety mellowed. I am abt 4 1/2 years out now and things are a lot better mentally and physically not 100% but close. It has been a very long,hard road I am still going to physical therapy and am now doing acupuncture trigger point therapy to help with muscle tissue damage etc I can say for me it is helping. Well Sean hang in there and know your not alone. These types of drugs have destroyed a lot if peoples lives and just made others hard,painful,disfiguring and just plain Scarry. I would talk to your Dr. About other alternatives before taking xanax especially if you have addiction tendencies. I’m no Dr but i have a lot of experience with this poisen as well as everyone else on this site. Anyway take care and let us know how your doing.
P.S. prayer and meditation very important! You will get through this 😉
Correction on xanax dose I took 0.25 not 2.5 sorry and like I said last resort but like you I tried everything else and nothing helped so that is why I tried the xanax. I don’t take anything now except aleve for pain and I am still working out regularly and it is the only thing that kept me going through out all of this. Still gave soft tissue problems etc but not anywhere near what it was. I feel that maybe another year and I may get back to where u was. It is sad tho how many years this drug and these drs have taken from us but we have keep going. I have to say its good to see that everyone is still here supporting others. Here’s to a wonderful blessed new year for us all!
My Blood Pressure was high before (on two BP meds) as I’m a pretty stressed out person due to some hardships over the last few years. However, the 2 BP meds DID bring the BP under control. After the Kenalog-40 shot, my BP went up again. I’ve just added ANOTHER BP med (Propranolol) and my BP is just barely OK now. The Propranolol stops the palpitations, but it doesn’t stop the anxiety or panic attacks. I’m on Testosterone replacement as well as Thyroid replacement and have been on both for many years. TRT has only been positive…not a single negative ever. I just purchased a blood test myself online for TSH, Free T3 and Free T4 which I will have drawn on Wednesday. I should have the results by the weekend hopefully. If my Thyroid levels are still good (they have been good for years), then that leaves Adrenal hormones. I haven’t lost appetite or muscle, probably due to being on TRT. I can eat carbs, but I don’t usually eat many as I try to stay lean all the time. I lift regularly and I don’t LOOK like I should be having any issues. However, the nightmare begins at night when I attempt to sleep. I recently used 1mg Klonopin AND Propranolol and only slept a couple of hours before waking up in a panic. It seems like my case is getting progressively worse by the day. I have a followup with my cardiologist (I got an EKG, an ultrasound on my heart and did a treadmill stress test) in 10 days. I’m hoping that SOMETHING will show up and give me direction. As it is, I’m scared to go to bed. If I try to sleep and fail, I go into a panic. If I dose off and wake up an hour later…I go into a panic. It’s like you just want to sleep, but you can’t turn it off. After hours and days of this, you almost just want to opt out of life….if only it were that easy. This is the most physically uncomfortable thing I’ve ever experienced….completely overwhelming much of the time.
Has anyone tried Prozac? I’m looking for options other than Benzos and Propranolol to help with the anxiety and panic attacks. I am hopeful that the heart issues, anxiety and panic attacks diminish and go away entirely over the next 6-10 months, but gotta find some relief until then. Thanks for the input
I’ve tried Prozac but after the second dose I developed a sensory overload, hearing/seeing things much more intensively than before, so I had to stop. YMMV.
Hi Sean. It is my experience to go for the natural help. Try looking for melatonin, Gaba, Theanine, Tila and valerian tea for sleeping. B complex-Vit C and Magnesium Chloride for relaxing. And last but not least, Minerals Molybdenum-Selenium-Germanium-Lithium. It is my experience (after 2 Kenalog-40 shots that destroyed my life) to know that we, the badly affected by this stupid synthetic cortisone, have a low level of these minerals, so that make us very sensible to it. Please read about the deficiencies side effects. And one of the most important WATER enough to hydrate and keep you whole system running. Blessings/
BTW, I was prescribed Kenalog-40 for a SIMPLE ALLERGY! I was getting nasal congestion from several foods and every single night. Not only did the Kenalog-40 do absolutely nothing for the nasal congestion, I now have to deal with panic attacks if I allow myself to ever get congested. I have to bring nasal spray wherever I go now as I can go into full blown panic if my breathing is obstructed in any way….even just a little. Same goes for if I get too warm, have too many clothes or covers on me, etc.. I feels like I’m being smothered and the panic is similar to feeling like you are drowning (yes, I did almost drown once and it’s exactly the same feeling). I will never again take a doctors suggestion about anything without researching it first! I’m going to keep researching and experimenting and will post up what I find out or if I find something that actually helps. Thanks for the input and experiences, much appreciated.
Hi Sean! I’m currently having the same issues and it’s destroyed my life. I know this thread is years old but I hope people are still checking it. I got my first and only Kenalog shot about 5 weeks ago and I’ve been to the ER twice for what I thought was a heart attack. Clearly it’s this stupid steroid that is causing severe panic attacks! Please tell me you got better and this eventually does just work it’s way out your system! I’m so distraught. And heat seems to definitely make it worse! If you don’t mind and do end up seeing this could you please email me with your current status? Thanks so much!
Hi there, like you I am dealing with this now. Injection was Aug 2021. I am thankful that some of the terrible side affects are gone but I am not close to 100% yet. It has been the longest, hardest and worst 1.5 years of my life. I am a very healthy fit and full of energy person and I just can’t believe I’m dealing with this poison still. I don’t know how to function at less than 100%! This drug blew up every system in body. What I can tell you is that you have to get going everyday, nutrition and exercise even when it’s hard and you cry. Stay away from prescription drugs. I have done things like cryotherapy, PEMF, red light therapy, massage, reflexology etc. steam room and sauna to clear toxins. I’m am still at it and if you want to chat you can email me at rmolsen1964@gmail.com
Things do get better. It’s hard because it takes a very long time. Mindset and consistency is key. I’m angry but that doesn’t help me heal. Exercise, nutrition, hydration and rest.
Stay strong
Rose
I thought I’m over it. I was wrong. I had my only kenalog injection five years ago for a shoulder pain, and the side effect I had endure made me started this blog. I suffered for years of various debilitating symptoms but lately I was fine until one day about two month ago everything started to come back again.
It started when I realized, that I started to become intolerant to carbs again. It was the holiday season, so cookies and cakes were everywhere, it was impossible to avoid them. At the same time, my constant shoulder pain was gone and started to feel the other cortisone side effects, namely high blood pressure, tremors, dizziness, anxiety, tinnitus.
My BP rocketed to 150/100 from otherwise normal which worries me the most. I feel constant fatigue again and by night my head spins so much that I can only lay down and rest. Again, this is after I was fine for years. I think this proves, that this poison somehow stays in your system for a very long time.
Although the symptoms are less intense than immediately after the shot, nevertheless it’s hard to live with them. I am quite devastated when my ears constantly ringing and I can’t function at all. And my shoulder started to hurt again.
On the positive side, since I’ve been through once, I know what to expect.
Exactly the same here,was over five years ago for me and still got symptoms-blood pressure and sugar problems,stress,tremors,dizzy,tinnitus and some new very weird things,some days i think I’m gonna die it gets that bad.then maybe a few weeks gettin hopeful,but no,it always comes back. The tinnitus is always there though. On the bright side,not in chronic pain with herniated disks. Oh i found this page on facebook about CFLs and related,there’s like a billion people joined that group,i found it far too overwhelming.
Thinkin of ye all out there.
Hello, all. My name is Lisa. I’m 33 and have bad shoulders. My right shoulder has been operated on 3 times, with the last time being in 2010. I received 4 Kenalog injections over a period of 5 years. In 2013, I suddenly developed an anxiety disorder. I proceded to injure my left shoulder in June 2014. Got a lot of Toradol shots, then the doc finally wanted to do a Kenalog injection for severe bursitis. Four days later, 15Dec2016, I’m being taken from the karate studio to the ER via ambulance. Heart was skipping beats, BP 160/114, sweating, nauseous, rash on my chest. ER doc said anxiety. I’m a nurse. I knew better. Ended up having to go see the cardiologist because every time I’d move my arm, I’d get a “steroid rush” and feel all jittery. I had to wear a monitor for 2 weeks. Stress echo was normal… but I still get palpitations with exercise… I’m a year out from obtaining my black belt. So, this is really not cool! It’s been right at 3 months and I’m still feeling some side effects. I’m constantly shaky/jittery/ having muscle spasms. My anxiety is worse. And my shoulder looks completely deformed and has been bruised/red since January. It freaks people out to look at it. And, of course, doc denies this was the steroid. Says my shoulder is normal. I’m so frustrated! Please tell me this gets better!
Can somebody explain why there are no comments from 2016 or 2017? I know there are many more victims out there. Myself included since I posted some last year. Please, any one.?
DEAR ARMANDO;
I AM SO SORRY THAT WE HAVE NOT WRITTEN TO ANYONE, BUT I HAD A MASSIVE STROKE IN 2015. PLEASE, EVERYONE, COULD WE GET THIS WONDERFUL GROUP ACTIVE AGAIN BECAUSE WE NEED EACH OTHER FOR SUPPORT.
I SEND MY LOVE TO EACH OF YOU…..LOVE ALWAYS…LEA
Love to you too Lea,hoping you well and glad your back!
Gmail has censored my emails about a year ago. Now anyone trying to mail me about kenalog will not get thru. Sick bstards.
Coming up 6th year post kenalog here and still sick 70% of the time.
Hey Robb, sorry to hear your still not 100% unfortunately neither am I things got better for awhile but things seem to have stalled for abt 6 month’s 😦 lots of nerve pain in legs, bad pain in soft tissue in my hips and the lates has been really bad cramping in my calves and ham strings so bad it scares me. I am 5 years out next month and have going to pt for 4 years. I am still working out but not a lot of progress lately. I just keep on keepin on. I wish you and everyone out there suffering from this poisen well. I continue to pray for our complete healing. God bless…
Thanks AK, prays you get better my friend,and everyone else here.
I would get several emails every month from kenalog victoms looking for wtf was happening and who what why where,so I could send them all my links and this website for contacts and help. How those low lifes have now censored my email preventing others to contact me really shows the extent they go to to cover kenalog. one day i was replying to lady desperate for help in the initial hell of symptoms when her email vanished,including my inbox,so i wasn’t able to contact her again,and since then i havnt received a single email from any kenalog related inquiry. Soo fustrating and enraging.
Rob, thank you for your response I have been wondering if my posts have been getting thru. Lately things have been moving in a positive direction for me. My hamstrings are getting stronger and putting on and holding some sz yay! Also the flutes are doing a little better also my glue mediums and minimus are still struggling there is activation but still no sz yet but I’m hopeful 🙂 as of the 22 and I am 5 years out from the
kenalog 40/ marcaine injections. This has been a long road to recovery that none of should ever be on. My heart goes out to the newbys here because it is so scary and devastating. All I can say is hang in there,work hard,stay strong,don’t give up hope and eat as healthy as possible to help cleanse the body of this poisen and of course keep sharing your experience, strength and hope here for all to see because some day it will help DR’s ,lawyer’s,The FDA and others to see the truth in how these types of drugs are destroying lives! God bless each and every one of you …
Sorry for all the typoes in that last post I didn’t check before I hit send 😦 just to add one thing. Thru this whole journey there seems to be a lot of going back and forth with the healing gains, things do good for a bit then there are setbacks but eventually things do get better and stay.so my advise to all is please don’t give up remember this to shall pass and you are not alone and what ever you think is happening? It is!!! And you will get thru this. We may or may not get to 100% but it does better.thank you for being here for me and I hope I have been a help to you as well 😉
Hi all,
I underwent an injection of Kenalog into my throat in December 2016. Since then, my quality of life has massively degraded. I don’t want this to become an echo-chamber, but I experienced many of the same symptoms. Hair loss, 4 month long period, GI problems (diarrhea and vomiting), aging of the face, nerve pain, blood pooling in arms/legs, DENT in my throat where injection was administered (along with dark hairs growing out of said dent…), etc. Naturally the doctor denied any connection w/ corticosteroid, which I found very frustrating.
Worst of all I think is that it has deteriorated a lot of my relationships. I was very forgetful, confused, stressed, anxious, and just plain “out of it” for about four-five months following the injections. I also had nightmares frequently. My family is only just now starting to understand the connection to Kenalog, which I appreciate because before I think they just thought I was being dramatic. I have been in touch with a pharmaceutical lawyer and am exploring taking legal action against the manufacturer.
Another strange symptom that I want to discuss is the weight loss. I experienced an INSATIABLE hunger for carbs and sugar and somehow I was losing weight. So I was eating 3000ish calories daily, losing weight, but going up in clothing sizes? My performance at the gym wasn’t terribly affected, so I wonder if it was muscle being lost or what? Also, the weight went to my arms/legs?
Just wondering if anyone has experienced this? Also, my hair fell out and what’s left is a weird texture along with my eyebrows. When does this get better?
Thank everyone. There’s something to be said about the old adage, “Misery loves company.” Especially when the rest of the world thinks you’re delusional.
There is no other way but to tell you for everyone it is a bit different, but most or the majority are very similar.stop getting the shots there killing us all a little bit at a time .
There is no way to reverse some symptoms
But others symptoms can be treated thru life style changes, exercise ,lot of prayer.
Read some of the older comments, than you’ll understand. Let me know how your doing.
GOD’S SPEED
Ditto!and if your lawyer takes your case please let us know and let him know just how many others are suffering from these types of drugs maybe he could help us to 😉 the fda and the pharmaceutical companies obviously don’t care. Hang in there stay strong, things will get better but it takes years for most of us 😦 I’m 5 years out from kenalog 40 injections as of the 22 of next month way better but not 100% yet and I say yet because I refuse to give up. God bless!
Thanks for the replies everyone. Does anyone know when the hair grows back? I’m 8 months out with very little regrowth in site
I’m a 22 year old female.
(I AM IN CAPS BECAUSE OF MY STROKE.)
BLESS YOUR HEART; I HAVE NEVER HAD HAIR LOSS, BUT I HAVE HAD EVERY OTHER SYMPTOM THAT THE OTHERS HAVE MENTIONED. I HAD THE KENALOG/MARCAINE INJECTION IN DECEMBER 2011, AND NOW WE THINK THAT THIS MIGHT HAVE CONTRIBUTED TO MY STROKE (OCTOBER 2015). EACH DAY WE PRAY THAT I WILL BE ABLE TO WALK AGAIN, AS WELL AS REGAIN THE USE OF MY RIGHT ARM. I, TOO, SEEM TO BE GETTING NO RESPONSES. IS THERE A PROBLEM WITH THE WEBSITE? PERHAPS SOMEONE COULD RESPOND TO THIS EMAIL TO LET ME SEE IF I AM RECEIVING RESPONSES.
I AM SENDING LOVE AND HOPE TO EACH AND EVERY ONE OF YOU…LEA
This is a reply Lea….I’m 3 1/2yrs. since my one and only kenalog shot, not even close to being over all the side effects! They bite me every day!
Thanks for the reply. I feel extremely hopeless and suicidal. I’ve been taking pictures of myself since this ordeal started and I look completely different. Also, my intolerance to carbohydrates is back
I tried to eat some crackers yesterday and started bloating with diarrhea again. My symptoms are flaring up again and I don’t know of any other choice than to kill myself. I can’t do this for another day. I just can’t.
Well you don’t want to hurt yourself, especially not kill yourself !!! . You can make it thru this.
I was on this poison for years until it hit me like a freight train and flipped my world upside down. I felt as you do , but I’m still here.
Everyday can be a challenge, try not to focus on the many side effects, instead push yourself every moment to survive. I am you ,you are me ,we can all make things better.
God Bless you and ease your mind. You are Loved by many my friend.
FEV, please keep faith that you will make a recovery. I am nearly five years on and my life is finally far better. I had very very little hope that this would ever happen. I felt exactly as you do now, emotionally ruined and hopeless. Please remember this stuff plays awful tricks on your brain but you will start to improve. I have seen this in so many people now and it DOES get better. Take care of yourself. One day the people who make this poison will listen to us.
Emily, UK
FEV,
We all had crazy thoughts after the shot. I know how exactly you feel. Never give up, you are much stronger than you think.
We are all here for you. Everybody does get better sooner or later. I started this blog because of the same thoughts you have now.
If you have access to CBD, legal Cannabidiol oil then try it. It always make me feel better when I experience a flare-up.
If you want, we can talk on Skype or on the phone or I can give my private email.
fev,please don’t hurt yourself I also went thru the exact same thing anxiety went thru the roof along with suicidal depression it was so scary and just awful but in time it eased off and things got better a little at a time. I am 5 years out this month and I can tell you things are so much better not 100% yet but I have hope it will get there. I have taken pix along the way myself and I totally understand you seeing the change in your body sometimes I still get sad over it but like I said it is getting better. I have been seeingca physical therapist for 4 years now, I work out as had hard and as much as my body will tolerate and I see a massage therapist, eat healthy and stay away from the bad carbs as much as possible 😦 I still can’t do white breads,pasta etc without bloating up like a balloon but those foods aren’t good for us anyway. You will get thru this it won’t be easy but you will! Just stay strong and listen to the advice from all who are here on this site, we know what your going thru and we know what we’re talking abt. Lots of good people here. None of us thought we would ever get thru this but here we are.Gid bless you and jeep you close. Remember this to shall pass and we are not going yo let this drug ruin us and take our lives away. Some day the fda,drs and pharmaceutical companies are going to have to listen just stay with us and we will help you get past this.
Thanks for the support.
You all know as well as I do how isolating this experience has been. My boyfriend thought that my emotional response was for attention. For about three months I couldn’t concentrate at work or even carry a conversation. I work at a medical malpractice law firm, ironically. I kept the side effects hidden from everyone until one day I broke down and told my boss. I asked him if this was worth pursuing a suit. That day was last week. He is looking into it, but I don’t know if I can endure the side effects any longer.
You all are much better people than I am. I do plan on taking my life tonight. I know you all understand why I need peace after this hell.
We have all been where you are now. This drug is known to cause suicidal thoughts. It will not stay in your body forever.
None of us are better people than you. We have just had longer to recover.
This is not you, it is a mind warping drug.
YOU WILL GET BETTER
WE all understand. Use our strength to comfort
You.
I thought I was the most horrendous thing on this planet when I was in the depths of this thing. I am SO much better now and you will be too.
Just keep going and a better day will come.
Emily x
ZB,
Thanks for reaching out. I am available to talk by phone, if you’d like. I just don’t know what to do anymore.
How should I go about giving you my contact information?
Thank you Emily
Your response brings tears to my eyes. I’m over 8 months out and I just wonder why things seem to be getting worse and worse. My hair is still falling out and it’s begun to affect my eyebrow hairs as well 😦
Every time I think I’m better, I get worse. Psychologically, my word recall and concentration is better. I am not as tearful as I once was, despite saying I am right now…
I fear that it’s still lodged in my throat since the muscles are so tight. I still have a dent.
I just don’t know what to do or where to go.
I was very bad at the point where you are now. It took months and months before I stopped crying all the time and my thoughts were jumbled and insane.
I was the opposite of the happy, relaxed person I had been before the injection.
It took a long time but I am SO much better.
The drug knocks out all you minerals and therefore serotonin levels.
You must keep telling yourself that this is the steroid. Normal you is still in there and you will be reunited when it finally wears off.
Among this group it is not unusual to have a very bad patch several months in.
YOU WILL GET BETTER.
I watched a friend go through the same experience after a steroid injection. Abject depression and anxiety. It made me realise it wasn’t just me.
You are not alone. Your normal feelings and thoughts will return one day. Keep going, it will be worth it.
Hi everyone,
I don’t want to leave off on a cliff-hanger: ZB and I spoke on the phone and I am feeling a lot better. I am very thankful that he created this blog, because I find it comforting to be among others who understand my plight. I probably wouldn’t be around if it weren’t for that phone call.
I know tomorrow won’t be better, but hopefully sometime in the near future things will be on the mend. I think I will pursue saline flushing to help get this out of my system.
Regarding the law suit: I don’t know why it took so long to open up, but since I told everyone at my firm in the last week, and my case has piqued their interest. Apparently the disfigurement and medical debt incrued is worth something? They mentioned a class action, and if they determine that that is a fruitful endeavor, will come back and let you all know. Not trying to put my eggs in one basket so I’ll forget about it for now.
Emily, thank you for your response. Just everyone, thanks. Thanks for not judging and for understanring. It’s easy to forget and move on in life.
Hi guys,
I hope you are all well and recovering more everyday.
Sorry to go completely rogue and suicidal. The truth is that we feel our lives/bodies have been stolen from us. From what I’ve researched and gleaned from your stories is that no one becomes 100% again. It does seem that after some time we lower our expectations and this becomes the “new normal”.
Which I guess is acceptable.
I’m writing to update you all on the case. I haven’t been successful in putting together a class action, but that’s mostly because I’ve been buried at work. I did receive a reply to an inquiry regarding suing Bristol Myers Squibb, and it would be difficult because they have their connections. It seems as though the costs of pursuing a suit outweighs the reward, if any.
Did anyone experience weird weight distribution? My thighs and upper arms literally exploded and it seems my weight decentralized. Does this get better? Also my weight is still low-ish but I can’t fit in my clothes. It’s extremely odd.
To those who felt they looked aged, did that ever get back to normal? Were you able to retain muscle after working out? It’s odd. I can do an intense workout, but the next day I don’t feel sore. Almost as if it never happened.
I went to a consultation for saline injections for the atrophy and the doctor was like, “the crystals are gone by now it’s been 8 months.” You’d think after having countless doctors lie to my face (or be completely oblivious…) about the side effects, that one more wouldn’t affect me, but it just fucking breaks me down. I live in Chicago and I just sat out on the lake after my appointment, cried, and looked at the sky asking why this was happening.
Sorry just need to vent.
Hi FEV I read your post and I get worried, sorry for writing until now. I was like you, it´s been almost 4 years. My hair was thin and falling a lot, I lost much weight that I haven´t gained again. I had anxiety and panic attacks, I was like you I became antisocial person because I really felt bad with vertigo, dizziness, fainting sensation, etc. I cried a lot I want to die even I have a good reason to live, I have a daughter. This is so tired and I was desperate. My recovery was so slowly. Now, I feel better and enjoy every day of my life. I have some symptoms but in general I feel 90%. I eat clean as possible. I don´t drink soda and alcohol. I don´t eat pork or processed food. This weekend I had a trip with my family, it was like a miracle. Almost 4 years ago I felt die and now I stayed there enjoying the sun the air and my daughter. I feel really happy even some symptoms remains. The pressure and climate changes bother me a little. By the way my hair grow up and it is thick.
About weight distribution I think I have characteristics of Cushing Syndrome without fluid retention. My buttocks had disappeared and now they have grow a little.
Sorry for my english I am not a native speaker but english language helped me to look for answers to this health issues, because people don´t believe that corticoid steroids made me this.
Don´t give up! Send you hugs!!
Miriam so glad to hear your doing much better! I am doing really good myself finally! About 2 months ago my glutes collapsed again but now they are back and holding up. A lot has changed and I am happier as well. Its been 5 1\2 years for me now I still have some atrophy but its only really noticeable to me and my p.t. so I’m good and the pain throughout my body is better as well. I feel I’m at abt 80% now the one thing that is still a problem is the fat distribution it still doesn’t look like my body but im hoping in time that will change to. I hope all of you are doing better and for those of you just going thru this hang in there! Stay strong or get strong because you have to be to get through this. There was a time when none of us here thought it would ever get better but it does. Big hugs to all of you and thanks again for still being here for each other. I would never had made it without you all!!!
Thank you for the reply, Miriam. Your English is very good!
This gives me some sort of hope. I’m happy to hear that you’ve been able to enjoy activities with your family again.
I too try to eat clean and avoid alcohol. It just adds to the misery if I don’t. If I drink diet soda my joins feel inflamed and achy.
By the way, how long did it take for your hair to get back to normal and stop falling out? How did you comfort yourself during times of uncertainty about your recovery? Which of your symptoms remain to this day?
Thank you, again ❤
After the corticoid my hair grew very fast, then it falling out for about one year. My hair was very thin and slowly grew. It took 2 years. Also I have furrows on nail and it dissapereace just at the same time I feel better I guess my body repaired itself. One important thing is that if I am in continuos stress I had relapses. The more time passed were less hard. Now when I do many things in day I take the next day slowly. I think I had a inmune response to some meals even odors or perfumes that cause inflamation and achy. I know how you´re feel. This is a long nightmare but there is nothing only we go on.
Thank you. Your words have comforted me more than you know.
Hang in there Fev,i know its hell,take some comfort to know there are many of us and totally understand what your goin tru, there are still good days to be had,and who knows,justice could also prevail.
Thanks, Rob ❤ This sucks. I have no idea how any of you made it through this, especially with very little people who understand outside of this forum.
Today I am really pissed off. Borderline tearful. Waking up everyday is like waking up to a nightmare. I never know what new symptoms I will be greeted with, or what I will encounter. I wish I could end it all, I really do.
I have no idea if or when any of this will resolve. I have spent so much money seeing specialists. My legs and arms blew up, which is symptoms of a hormonal disorder called lipedema. It’s not reversible. I’m terrified of what else is going to happen, and whether any damage his been done to nearby areas since he injected me throat.
I’m angry that no one believes the symptoms stem from the Kenalog, despite them being well documented side effects. I don’t want to pay any more money. I don’t want to see any doctors. I don’t want to be touched or prodded, I want to be left alone. I feel that the people in my life don’t respect me anymore, because of how emotional I have become. I don’t want my hair to fall out anymore… I don’t want to shave my head 😦
I just want to wake up when this is over… Just to be assured that at some point this will have an end would be enough…
Yes, this is a semi-psychotic rant. I wouldn’t wish this experience on anyone, except, of course, the doctor himself so that he could experience it firsthand, and maybe then he’d change his tune about whether or not side effects from Kenalog are real.
FEV,
Nothing wrong with ranting. We all understand your words clearly.
Don’t beleive doctors when they say something is irreversible. They were the ones who told you, corticosteroids have no serious side-effects. Blah.
I respect you and respect you courage. Keep on fighting and remember, we are stronger than we think.
ZB
ZB,
Thank you for always reserving judgement and for your unwavering optimism and support. Sometimes I have no idea how you all got through the dark times. It’s the not knowing if things will go back to normal that eats me up inside.
My Name is Jennifer. I have ALL but 3-4 of the Side Effects which have put me on Disability SSDI since 2011. I’m 44 and I LIVE through HELL everyday, just like the rest of us! PLZ contact me at jimmacjen71@gmail.com. I am Very Educated in this. Bristol Myers Squibb and the FDA, Want to blame the Dr’s for the kick back that they receive! COME ON, FDA & ‘BMS’ are in it together to FRAUD MEDICARE & Make Billions’ on US that have a death sentence/have passed away &/or keep us Sick! #Trump CAN & I HAVE FAITH WILL CRUSH THE FDA & BMS, giving Their Billions to US! You DO NOT BELIEVE THE FDA is in ANYONE(S) BEST INTEREST??? Mmmm. NO. Yet,you CAN SUE ANY COMPANY for ANY PRESCRIBED/Some OTC Medications’, Yet WE CAN’T SUE BMS… YES, FDA & BMS Will & CAN give us at LEAST The Money WELL DESERVED., to at least pass on to ALL OUR LOVED ONES’. I have Myeopathy, Myelopathy, Radiculapathy, Incontinence at night, RA, OA, OP, Thinning Skin, hair loss, loss of appetite, Dents’ (3 with a purplish, reddish, black patch in 1 of the 3 dents in my buttocks, as soon as it ‘heals’, it fades away, NOT COMPLETELY, starts itching== then back to starting the itching colors, size of a quarter patch), Lost 6 sizes from a size 5 Juniors’ to NOW (9-01-2017) since January 2017, to a little girls’ size 8/9, which is muscle atrophy, avulsion fractures in my spine, Sponylolisthesis (broken back). I can name more. Shall I? God have MERCY ON THEIR SATAN SOULS’. GOD BLESS ALL OF US, ALL OF THE SICK no Matter what their cause,ESPECIALLY GOD BLESS WHOMEVER IS FIGHTING FOR ALL OF US ON HERE, AND THE 1 & ONLY WHOM STARTED THIS!❤🙏🙏💦. We CAN/SHOULD take this to the Supreme Court!
Ty,
Jen
Hi Jen,
I’m sorry to hear that you’re still suffering side effects from this awful drug. It sounds like you’ve have a few injections, when was your last?
Here’s a really interesting article about the side effects of corticosteroids.
http://www.acupunctureintegrated.com/articles/corticosteroid-risk-and-natural-anti-inflammatories
It was authored by an acupuncturist who seemed to have a better understanding of the ways in which corticosteroids alter various systems in our bodies. Honestly, this is the single most helpful piece of literature I have found to date, other than finding you guys, which was a blessing. Unfortunately, I went to send him an email and learned that he died recently. Back to the drawing board…
I do wish there were more active members here. As a result of the injection, I am breaking up with my boyfriend of almost three years. I resented him for not being there for me when the mental side effects were at their worst. He didn’t understand because if you don’t go through it firsthand you don’t understand what it’s like. It really drove a wedge between us.
I would probably be taking this poorly if it weren’t for the injection, but it’s even worse because I don’t recognize myself anymore. My skin is blotchy from circulation issues, my hair is thin and falling out, my face is blown up like a moon, I have nerve pain at 22, etc. I’m moving out of our apartment soon with my little dog.
I’m scared I’ll never be normal again. I don’t feel attractive enough to go meet other people and I can’t drink or eat like a normal person because it exacerbates side effects. I don’t know if my hair will grow back to it’s original density. I have no future. I have nothing.
I’ve got a question. Since my wife and I had kenalog shots, (my one and only shot), we both feel like we’ve been beat up when we wake up. This lasts for about the first hour in the morning, and has been 3 1/2 yrs. for me and almost 4yrs. for her. Anyone here experience this? We both have had in addition to this, all the other side effects. Right now this is the worst one, but that could change tomorrow.
I do! I feel like my body aged 10 years in the last year and a half. I continue to work hard to get my body back the the fur healthy state that it was for 57 years!! I’ll never stop
Are you back to 100%?
Rose
Anyone left on this site??
dear dick;
I am still here; however, things are still not good for me. I had the flu and that was awful. I am sorry that you are still having symptoms. please stay close. the symptoms that you both are having sounds awful. I do not have the symptoms that you are experiencing, but someone else in our precious group might be able to help you.
love and hope to you both…always…Lea
Dick,try taking St. John’s wort pills for awhile,i found they gave me more energywhen waking up, took 2-3 weeks for them to start working,also i required less sleep with them.
Hi all,just want to share this link.
And,multiply those known reports by about 10,000 or more for a more accurate statistic. Latest FDA info apparently- link-http://www.ehealthme.com/drug/kenalog/side-effects/
Seems to be a ton of symptoms not listed by them that we have in addition to whats on there. And i noticed a little catch 22, in the 5-10yrs symptom column, “thinking abnormal” ! . I’ll remember that when im hurling sticks of dynamite into the compounds of all the gutless corporate components responsible.
Sigh… add me to the list of negative reactions to this injection. Had a total of 2 injections of 10 mg triamcinolone (kenalog I guess) into my right neck facet joints C3-C4, C4-C5 (20 mg total) about 4 months ago. Developed severe muscle spasms and joint pain shortly afterwards. Developed tremors 2 weeks afterwards and swelling radiating from the injection site. It’s almost like my body reacted with swelling and inflammation to prevent this steroid from spreading, but eventually it spread it seems. Was tested for infection, negative. Had MRI recently, nothing to report. Things are only getting worse it seems and consistent with what others are reporting – i.e. heat and exercise making things worse. I basically can’t do anything with my right arm now because it causes so much pain in my right neck and shoulder which wasn’t a problem beforehand. Actually, I really can’t do much of anything… I go outside for some fresh air sometimes and that’s about it. Tremors worse, fatigue bad, insomnia, muscle and joint pain all over (esp. in arms, upper back and along shoulder blades), paresthesia in my right arm and right side of face, tenderness and pain in right side of neck and throat muscles, and bad abdominal pains that are shooting at times. I feel off balance as it seems there is something severely off in my right neck and shoulder region in addition to the ailment caused in my right arm. I go to the doctors and the ER but they just think it’s my original condition getting worse or that I am hysterical, but I’m not!! I live in Canada and it is hard to get good help unless you are only mildly or severely ill. Although I feel like this stuff is eating away at my neck and my insides, I’m not dying and therefore it is hard for me to get any sort of help or answers. I will have to wait probably 6 months, a year, or maybe even longer to see any sort of specialist about this and they will probably just say that it wasn’t due to the injections. This injection did nothing to help my nerve pain that I was experiencing in the right side of my neck and head, and only made things worse. Maybe a misdiagnosis, I don’t know – It was supposed to be a diagnostic injection. Looks like I’m in it for the long haul now. I’m scared and worried about why things are getting worse and how bad they are going to get, but no one can know for sure. I used to be physically fit and active and now I’m just a disabled couch potato.
Evan, I am so sorry that you to gave fallen victim to this dangerous and life changing drug! It is so sad what all here have had to and still are enduring because of it. I only pray that some day soon the fda and some attorney will listen and help do something abt this. Anyway I’m not even sure if my replys are making it thru so I will keep it short God bless you stay strong you will eventually get better but it sounds like your in for a long haul 😦
Just airing my grievances, at no one or nothing in particular. This has been one hell of a year. I barely remember months 1.5-4 after the injection. It would be a miracle if around the one year mark things will slowly start to turn around.
I’m a little over a month away from my anniversary. Mentally, I’m in a much better place. Honestly, it’s mostly because I’m numb. I’ve let go of wanting or expecting anything good or positive to happen. Maybe the Buddhist’s are on to something – about not desiring. Which sounds like a beautiful revelation, but really I’ve just become rather nihilistic. It’s hard to make sense out of what has happened.
My body looks foreign to me. I barely recognize myself. After losing weight in the first 6 months, in the last few months all of that has reversed and I’ve gained a considerable amount of weight. Around 15 pounds. I wish this stuff would just leave us alone.
Emily was really on to something with the steroid depleting minerals. Since adding magnesium, epsom salt baths, grey sea salt, etc. my blood pressure and mottled skin on my legs has been much, much improved. TMI, but I’m not peeing 20 times in a day anymore.
I don’t really know what else to do but hope that I’ll recover and things will go back to normal. It does seem that after some time people stop coming back to update, and I hope that’s a sign that things start improving and we’re able to or force ourselves to move on.
I struggle a lot with forgiveness. Forgiving my doctor. Forgiving myself. Forgiving others for not understanding. Watching videos or reading about internment camp survivors forgiving their torturers is totally nuts to me. It really makes my experience pale in comparison, and yet they still forgave. Not necessarily because they deserved forgiveness, but because the victims really needed to feel peace and closure.
Well, there’s my contribution. I hope anyone reading this, perhaps years from now, and struggling can relate.
“It does seem that after some time people stop coming back to update, and I hope that’s a sign that things start improving and we’re able to or force ourselves to move on.”
I just got used to my new self and learned to live with the crap! My wife is the same way. After 4yrs. she still has bad arm itching after exercise.
Hi there,
I think people do move on, thank goodness. (Also if I try to reply from my phone I find I have to scroll through hundreds of messages and often give up, though on the PC I can click in the ‘reply’ box — lots easier.)
I’m really glad my info about minerals may have been some help. I also took 5HTP which is a natural building block for seratonin. I took it for about a year before the anxiety and depression really lifted (I started this at least a couple of years after the depomedrone injection — wish I’d known about it sooner).
I am now 5 years and 6 weeks post injection. As with most of you, my brain really ‘broke’ 6 weeks after the jab, so I’m exactly 5 years on from there. I am very, very happy to be able to reassure anyone in the depths of this harrowing experience that my optimistic personality and peace of mind finally returned (though I daren’t take it for granted). It has been such a long and difficult road — as you all know only too well.
I have met countless people similarly affected by steroids. It truly is a scandal.
Stay strong everyone and thank you for being there when I really had lost my mind and didn’t know how I’d get through each day. I rarely left messages but for YEARS I read all of yours every day and you really helped me.
xx
Emily – Thank you sooo much. I’m relieved you hear that you’re doing better. It’s little nuggets of hope that keep me going.
Dick – I’m sure any remaining symptoms, big or small, are a glaring reminder of what you and your family went through. I’m so sorry.
That being said, I have over 25 concurrent symptoms that I can think of off the top of my head. I discover new ones all the time. It would be foolish of me to think that at least some of them wouldn’t resolve or improve.
I’ve read the comments here enough times to know that many experience relief of at least some of their symptoms after some time. I’m guilty of not noticing or acknowledging this myself, because as soon as one resolves we turn around heads back to everything else that’s bothering us.
This is why I will always come back. Just as all of you have, to comfort newcomers. To provide hope and guidance.
Will somebody please let me know if my posts are making it thru. Thank you!
I am monitoring the site everyday. Your posts are going through.
When I started this site I never thought it’s going to be almost a thousand comments. I realize now that reading through 5 years of history is quite a challenge and the layout of the blog is far from ideal but still serves it’s purpose I think. I will keep thinking making it a little more readable. I will let everyone knows if I come up with something.
In the meanwhile keep supporting each other, I think we make a big difference.
ZB
Thank you zb, I have noticed several newbies here and just wanted to let you all know how sorry I am abt what you are going thru. I am 5 years + 3 months out and although things are still not 100% things continue to get better a little at a time, it seems that just before something good happens it gets bad for a short time. I am still seeing a P.T. and things are going well. I continue to work out and this past 6 months or so things are holding up a little better the glute med and min are still not responding but the flute max is making a come back. Thank God! Starting to feel more like my own body although it doesn’t look like it used to I think its getting there. Please hang in there this us very hard work coming back from all that these drugs have caused and it never should have happened to any of us but its the cards we were dealt and we have to play with intention to win! IT IS NOT EASY!!! Anyway love to all…
Hello FEV and Group,
I’m so happy to have found this site, but I’m so sorry that everyone has had to suffer as I have. I don’t wish this upon my worst enemy and only dream that I can find a way to “cure” us all.
I’m a 34 year old male who is (was) an avid athlete. I used to eat extremely healthy and was in the shape of my life just a year ago. After being diagnosed with a bulging disc, I was urged to receive steroid injections, as I was informed by my doctor that this would be the safer alternative to taking Advil every day. In May 2017 I received 4 facet joint injections for a total of 80mg of Kenalog and my life hasn’t been the same since. Immediately after the injections, the whole room seemed to have gone dim and I felt woozy. Those feelings unfortunately haven’t gone away and I feel like I’m living life in the twilight zone, in someone else’s body. I’ve suffered with the symptoms so many of you have discussed on here. I’ve experienced near constant dizziness up until the last couple months, where now it at least comes and goes. Anxiety, vision issues, inability to concentrate, insomnia, tinnitus, etc. I received my MBA from a prestigious school in which I graduated in the top 5% and now I can barely concentrate at work and feel completely numb to life. I’ve been to countless specialists, had a countless number of tests, and all doctors, including my friends who are doctors, have no explanation and look at me as if I’m crazy.
I’ve tried to remain active, but after each of my workouts, it now takes me days to recover. Before, I’d have no problem working out 4-5 times a week, but now, I need at least a few days between light workouts, as I feel absolutely drained and lethargic, along with a bit dizzy.
It was just my 9 month anniversary from the shots, and it appeared I was improving ever so slightly each day. Almost as if it was a miracle, last week, I had a day where I felt as if I was almost 100% normal. I was elated as it seemed my vision was back to normal and I didn’t feel dizzy. I was hesitant to, but decided to work out and run that day, and ever since, I feel like I’m back to square one. I’m posting to see if you have any updates, as I feel very broken and lost, which no one seems to understand because I physically look fine. If anyone else has any other recommendations or ideas of what I could do to help, I’d be ever so grateful for your comments.
The only thing I can offer is: I was able to get ahold of another person who went through something similar. She only sent me one email, in which she said that “she remembered the anxiety, dizziness, and vision problems, that she had been through a lot and she was 3 1/2 years out and remembered going through this awful time, she told me to drink plenty of water and to walk for 30 minutes each day, and said that this too shall pass”. I sent her a follow up email to see if she could provide any sort of time frames for feeling better, but I haven’t heard anything back. I’m hanging onto the words from her email, as she provided me with the only hope that this will go away and I will one day feel normal again. Stay strong, stay positive, and I ask for any words of help that you may have for my condition.
Best to all
Your story sounds a lot like mine and I can tell you from my experience at the one year mark some very small changes started coming about for the good and then back to hell again this went on up until around the 4 1/2 year mark for me. At that point things started doing better like muscle holding up longer,pain getting better etc. Its hard but hang in there, listen to your body push when it let’s you rest when it doesn’t I even took a couple weeks off from my workouts from time to time. If you can get a physical therapist to do some trigger point work, facial release etc do it because I feel without that I would not be as far along as I am. Stay strong you have a long journey ahead believe your healed and know that all that your going thru now is part of your recovery. You said you had a really good day then bad again, thats a sign that things are waking up and trying to come back… Just don’t give up! You will get there!
Totally agree with AK…just passed my 4yr. mark. My situation is a little different since I had to have a heart valve repair at around the 3yr. mark, so I’ve been set back an addtional amount. Things do change for the better around 4yrs….just hang in there. I actually would see positive signs after 2yrs., but they didn’t last long…..very sporadic.
Thanks very much for the reply Dick. It’s good to know that this does get better, even if it is going to unfortunately take years, which is hard to believe. Did you also experience vision issues / dizziness / feeling like you were in the twilight zone? Does that get better, and if so, did you see an improvement at a certain time frame? Also, have you noticed if it helps to just stop working out altogether until this passes? So glad to hear you’re feeling better too.
Yes to visual disturbances and all other autonomic dysfunction. Workouts are a double edged sword…Long term they help. Short term, (right after the workout), they will cause horrible flare ups. My theory is, working out raises body temp; therefore, causing more steroid to be released into your body from the crystals at the injection site. This type of flare, for me would last about a day. The only problem is, I workout every day. By the time I felt better it was time for another workout!….fun…fun! These workout induced flares lasted about 1 1/2 yrs. if I remember correctly.
The most important thing…once you figure out what’s causing all your problems, it becomes much easier to deal with the situation! Knowledge is power and you have found the right site to gain knowledge!
Thanks Dick – I absolutely agree and appreciate finally having people being able to offer some answers instead of telling me “it’s not from the steroid”! When you say “yes” to the visual disturbances/other issues, were you saying yes, you did experience them as well, or yes, they get better?
Yes, I had visual disturbances. My wife has had hearing amplification and severe itching from Kenalog. I’ve had constant ringing in my ears, Tinnitus, since my one and only kenalog injection for Plantar Fasciitis. The visual and other autonomic problems have pretty much left…..so gradually I didn’t realize exactly when they did.
Thanks Dick, well I hope things continue to get better for both you and your wife. Have either of you been to any specialists? I’ve been to my primary care, pain management, ENT, neurologist (MRI exam of my brain), and endocrinologist and no one has had much of an answer other than “well, we’ve never heard of this before – I guess it could be the steroid, but hopefully you’ll start feeling better soon”. I’m contemplating going to the Mayo Clinic, Northwestern, or U of Chicago, but not sure how effective that is going to be.
Sorry for the late reply….no, we have not been to any specialists. our family physician just looked at me like I was crazy when I confronted him about my reaction. That said it all! The medical community knows all about this poison. They just make too much money as legal drug pushers! Our daughter, in the eighth grade also had a horrific experience with Kenalog!
Thanks very much for the reply Ak. I get anxiety just thinking about going through this for over 3 more years until I feel better, but it is comforting to know I may eventually get there. Do your comments also pertain to the vision issues / dizziness / feeling a bit detached? Does that get better, and if so, did you see an improvement at a certain time frame? Also, have you noticed if it helps to just stop working out altogether until this passes? So glad to hear you’re feeling better.
I am not a dr. So am only sharing my experience and so I can only make suggestions based on my experience, that being said I would say do not stop working out we need to wake up that connection to our muscles and the only way to do that is by using them even when we feel their not working. There were a lot of times that I experienced total collapse and I would get anxious and depressed all over again but you have to keep getting back on the horse after awhile you will notice that there is more time between collapse and the muscles start holding up for longer periods of time then eventually will start noticing a little sz coming back. I am not 100% but getting close. My right glute and hamstring are still atrophied but getting better. I lift heavy and eat as clean as possible etc I have tried many supplements some worked some didn’t. Try everything! As far as the vision went my eyes were in so much pain! I could not stand light of any kind and wore sun glasses to watch tv its weird to think back now but I believe the eyes began getting better between the one and 2 year mark. The anxiety was thru the roof the first 2 I believe and then bad flares off and on up until abt the 3 year mark. I suffer from a little anxiety anyway but it seems to be under control now. I know this is long but I hope it helps. But for the grace of God… I never would have made it without faith! Oh and it doesn’t take 5 years to get better there are lots of milestones and positive changes all along the way and no two journeys are exactly alike.so anyway listen to your body and taking breaks once in awile helped me. So once again stay strong and do everything you can no matter how weird it may sound. Deep tissue massage helped me as well. It hurts but its a good hurt 🙂 hang tough and look for all the suttle changes because they’re leading up to the big ones! God bless us all what doesn’t kill us makes us stronger…
P.s. as far as the detachment goes the emotional detachment went on for me until things started holding up and being more consistent as far as the physical goes there are parts of my body that still do not feel like me but even that has good days periodically. Hope this helps! With the fat redistribution I am trying to get used to this new me while I fight to get my old self back if that makes since lol! I will never give up!
Thanks Ak! If you can believe it, I wore sunglasses constantly for about 3 months after the injections – including in my office at work and while at home watching TV, so I can definitely relate! The sensitivity for me has definitely improved, but everything still seems real dim now. When I wake up in the morning, my eyes feel very puffy and burn throughout the day, as if sleep isn’t helping them recharge at all. Did your eyesight go back to 100% at some point? Sorry for all the questions, but I’m juts very thankful you’re willing to share your experiences! Thanks again for the words, and so glad to hear you and Dick are in the home stretch! I’m confident I’ll get there too, just have a bit of toughing it out to do yet…
I’m not even sure now how long the eye problem went on but I remember them oozing clear liquid,red,burning and very sensitive for at least a year with the burning and irritation going on longer. They are doing fine now with the acception of age related changes ha! This has been a journey thru hell and back and I’m not 100% but to a place I can live with it now. I still get a little upset abt it all from time to time and even those feelings are becoming fewer and farther between. I get upset when I have a flare but I recover so much faster now and just have to remind myself this to shall pass! Just keep on keepin on ! you will get there… Keeping you in my prayers
Thanks Ak, that means a lot. I definitely had a bad flare here the past couple weeks, but I’m starting to calm down and just keep telling myself that it HAS to go away. Have you been to any specialists for your issues? I’ve been to my primary care, pain management, ENT, neurologist (MRI exam of my brain), ophthalmologist, and endocrinologist and no one has had much of an answer other than “well, we’ve never heard of this before – I guess it could be the steroid, but hopefully you’ll start feeling better soon”. I’m contemplating going to the Mayo Clinic, Northwestern, or U of Chicago, but not sure how effective that is going to be.
Hi DI,
I wrote earlier in the week, but for whatever reason my post didn’t go through.
I’m sorry to hear that you’ve been struggling. I know exactly what you’re referring to about being in the twilight zone. For months, I’d estimate a good 9-10 months, where I SUCKED at my job. I was going through the motions but was very forgetful. I couldn’t pay attention to detail and just wouldn’t remember things I was supposed to do. I was getting drinks at Starbucks and would grab the wrong one almost every time, even though I was concencrating so hard. People don’t mention this a lot here, but my driving was horrendous too for about six months. I was parked horribly and always felt like the car was moving when it was stationary. I promise that aspect will get better. I’m still struggling mentally, but I absolutely would be if I hadn’t gained so much weight and have been balding for almost a year (it’s tough on a girl’s ego in early twenties.)
About working out, like you, prior to this I was in the best shape of my life. It took me six months to be able to get sore again after workout, but then I kinda gave up due to lack of significant improvement. If I could go back, I wouldn’t have stopped going to the gym. That’s just my preference. If you have to go down in weights or walk instead of HIIT, then do that. It’s frustrating but I sometimes watch stories about ESPN athletes recovering from injuries lol! It gives me hope.
I didn’t have vision problems like floaters or anything but the world being “dim” (in a literal sense, not a metaphor) has stuck with me. Things just look different. That hasn’t improved for me, but I’m only 14 months out.
Feel free to ask questions. I’m in the depths of this thing but I feel like there’s a light somewhere down the line. This is already getting lengthy, but once things start to improve your mentality changes. So for example it may take someone two years to recover significantly, and that sounds like FOREVER, but once you start seeing a light then everything else doesn’t seem so bad.
Hi FV,
Thanks so very much for the reply. Based on your experience, it sounds like we have a lot in common with what we’re going through. I’m glad that you’ve started to see improvements. I think if someone was able to come out and tell us “hey, this is what you have, this is how long it’s going to last, but you have to suck it up” – that would take away much of the anxiety associated with this process. Unfortunately, I guess we just have to trust and have faith that this will all go away someday! The dim vision / things looking different along with the dizziness is definitely what bothers me most, with the dim vision being a constant reminder that something isn’t right. I honestly feel like if that would just go away / get better, overall I would feel better about things. It was just 10 months for me since my injections on Monday, so it does look like I have a ways to go. If it helps at all, and what I’ve been hanging onto was, I did reach out to someone on another forum who experienced many of the issues we have. She told me she was over 3 years out, that she had been through a lot, that she remembers the anxiety, vision issues, and dizziness, but that I should start feeling better soon and that they will eventually subside. I tried reaching out to her again to see exactly when things improved for her, but she did not respond (I’ll let you know if I hear back). Up until a recent bout of bad anxiety, her words definitely calmed me in knowing that it seems like she went back to feeling normal.
I know all of our experiences are different in how this affects us, but I’m curious to know what, if any, improvements you felt between months 10-14 (where you are at now). Just looking for a little encouragement here. Also, as I replied to a few others, have you been to any specialists for your issues? I’ve been to my primary care, pain management, ENT, neurologist (MRI exam of my brain), ophthalmologist, and endocrinologist and no one has had much of an answer other than “well, we’ve never heard of this before – I guess it could be the steroid, but hopefully you’ll start feeling better soon”. I’m contemplating going to the Mayo Clinic, Northwestern, or U of Chicago, but not sure how effective that is going to be. Just curious to know what, if anything, any doctors have said to you.
Again, thank you very much for the reply, your words, and I’m really glad to see that you have been making progress in feeling better. If you don’t mind, if you could let me know if/when your dim vision resolves, I would greatly appreciate it! I know you’re five months ahead of me, which is relatively close, so if you don’t mind if I check back in from time to time with you, I would really appreciate it. Also, feel free to bounce anything off me. I’m sure my friends and family are tired of hearing me complain about this, but it seems like you and the people on this forum are the only ones who understand how awful this experience has been.
Thanks again, DI
DI,
I definitely agree that this would be a lot easier to endure if we could be reassured that it would end and we would be 100% back to normal.
If you scroll up on this thread, although I’m sure you already have, a lot of the earlier members mention vision problems/light sensitivity, which I believe resolved for them.
10-14 months has been interesting. My anxiety and memory retrieval has probably been the most notable improvement. Hair is falling out a bit less. Able to retain muscle while working out. Paranoia subsided a lot. Able to laugh more? At the same time, it’s difficult because I started to become overwhelmingly exhausted with this process. It became a perpetual Groundhog Day and the monotony of the symptoms has started to drive me nuts.
What I want to emphasize is that internally I feel a LOT better, but I’m very upset about my image due to lymph swelling, substantial weight gain, and hair loss. I do believe the problems you listed will 100% resolve.
I went to Northwestern, RUSH University Medical Center, some AMITA practitioners, Illinois Masonic, etc. I had to keep seeing doctors despite not wanting to, because there were so many complications that needed to be addressed (female reproductive cysts as a result of the injection.) I saw PCP 2x, endocrinologist 3x, neuro, gyno 2x, dermatologist 2x, ER visits 3x.
I can give more details about the hospital visits if you want to exchange emails. Until then, I hope you’re feeling better everyday.
FV,
Thanks for the reply and for the encouragement. This process has been so strange, marked by periods where things appear to be getting better and then others where they seem to go a bit backward. I’m not sure if that’s just the body trying to adjust to the medicine wearing off or what, but it definitely has been unpredictable. I can relate to the Groundhog Day feeling, and I feel like that is what’s been weighing on me the most lately, is the feeling of just when is this going to get better. It seems like in the past month or so, I’ve just been absolutely exhausted every day, wake up feeling like I haven’t even slept, and just go through the motions hoping that when I wake up the next morning things will be different, but unfortunately they aren’t. I’ve definitely found that keeping busy and keeping distracted helps immensely so your mind doesn’t wander.
That’s great that internally you are feeling better, which would only make me believe that all your physical changes should soon follow back to normal. Hang in there!
I would definitely be interested in learning more about your hospital visits if you don’t mind. How do you want to go about getting in touch?
What is UP with this post injection weight gain? I actually lost weight during withdrawal and up until 6 months in. Did this happen to anyone else here?
I instantly gained weight, like “cushings syndrome” around my mid section …..the proverbial “spare tire”. At the same time I lost a tremendous amount of glute muscle mass. All of this in spite of working out every day…everything has returned to normal after 3 1/2 yrs.
Dick, did you get your glutes back 100% I’m still working on it. The left side is oretty much back to normal but my right side took the worst hit and I’m still struggling with it 😦 any advise?
Yes…pretty much. I’m a runner, which by itself builds glutes, In the meantime I’ve had to have open heart surgery for mitral valve prolapse, (genetic) so that has been another blow to my conditioning. I just keep on pushing and dream of getting back my 17min 5k times. I like to dream big and work towards a goal, even if it’s just getting back to where I was!!!
Sorry to hear abt your surgery I wish you a speedy recovery! I know you will get back where you were because your strong like that 🙂 I’m not giving up either there have been so many changes for the good and I think im stronger than I’ve ever been, just have this last little bit to go. It comes and goes. Maybe I should try running see if that helps? When it collapses I get depressed all over but I never give up hope. 🙂 so your glutes came back 100%? Thats wonderful and gives me so much more hope for the future!
I also cycle in the warm weather months and that helps. You might try indoor stationary cycling as well. I remember going out to eat and sitting on hard benches and chairs. It would be very uncomfortable because I had no glute muscle for cushion…..that’s all gone now! Hang in there….keep working and it will happen in time!!!
Thank you Dick I will do try cycling as well and you are so right abt sitting on hard surfaces I can only sit abt 5 mins before I start switching from side to side it hurts so bad! But it is a little better at least on my left side ha! I still have a lot of nerve pain that comes and goes but at least it goes now, its not constant like it was for years. Anyway heading to the gym later so I will get on that bike 😉 thanks again.
My weight got redistributed to where all the weight in my glutes moved up into my waist. It looked awful! I was all bloated up. I also lost a lot of weight due to atrophy. I am still having problems with my right ham string and gluteus muscles although I have all my strength back after 5 years and 4 months from the kenalog 40 injections I still have no glute medius or glute menimus. Today I went to p.t. and she also noticed collapse or new atrophy to my right ham string and glute max 😦 but it seems to do this from time to time it comes and goes but it has never returned 100% I just keep praying and having faith that it will. I work out hard in the gym and always trying new things to keep as much muscle as possible. If I don’t it tends to get soft very quickly but I refuse to give up! I hope you are all doing better, keep you faith and stay strong it gets better it just takes time and for most of us a lot of time 😦 Merry Christmas to you all and I hope you have a healthy new year!!!
Me too. My body looks so weird and bloated. When did things start to go back to normal for you?
Well I would say for me I started doing better in the middle of the 4th year but it has been really hard I never did come back 100% just better my strength is back and doing well in that area but I’m sorry to say that abt a week or two ago something went wrong and my gluteus muscles collapsed again 😦 very disappointed right now because i was so hopeful.I’m a little depressed over it right now and just not sure what to think. I think I will go see a chiropractor and see if that helps, maybe order a enversion table stretch out the spine? I have been in the gym approx 4 days a week since abt a year and a half after injections. I should look awesome with the weights ive been lifting and I was looking better but now…. Just don’t know what to think I just don’t know how long I can do what I do just trying to get things back. I am so bummed right now and just needed to vent. Thanks for being here all! Your the only ones who understand or even believe any of this and since it did happen I’m just glad this site is here for support. Well I guess I will just keep going. God bless you all and here’s hoping we all get total health back next year!
AK – thanks for replying. It’s crazy discouraging because before this I was going to the gym like crazy wondering why I was losing muscle. I was doing competitive biking before work at 5am then going to intense circuit training around 7pm.
Around 6 months in, I gave up. Just as I was starting to get sore again from working out, which meant the damn thing was wearing off. But you know how it is, it gets tired fighting everyday.
I’m glad you’ve been making progress. You work hard for it.
Ok here we go again ha! As you know several weeks ago I experienced collapse again in the flute area it lasted about 2 weeks as it started back on its own again I went ahead and went back on amino energy as a pre workout and I’m taking 5 Mg’s of creatine this seems to help me I would ask your Dr first tho if anyone decides to take anything. I also changed my workout to lighter weight more reps but not really just as heavy as I can go for 3 sets of 12 I separate leg day from upper body and only work legs 1 to 2 days a week. I still go to p.t. I’m down to once a month now after 5 years! We have done just abt everything. Ultra sound, tens,trigger point release, fascial release, dry needleing which is similar to acupuncture, I saw immediate results with this this! Also cupping and scraping to break up fascia I also get deep tissue massage about once a month or when ever I can afford it. I also have not given up in the gym. There were times I didn’t think I could keep it up but I did because in order to beat this we have to have faith and be stubborn as all get out. The pain is so much better! I have some nerve pain along with pins and needles but overall things better! I can remember when o could not see any light st ghr end of this tunnel but there is light! Hang in there don’t give up hope it will get better just keep trying new things and figure out what’s best for you. Traction is another thing that seems to help. Its a new year and there are good changes to come! Thank you all so much for being here and continuing to support each other and share what works for us.what ever you do don’t give up! Sometimes the body needs rest and I have taken a week or two off from working out just listen to your body.
I lost a lot of weight as well, all my muscle was gone but I also had what I believe to be Cushing’s where my weight was redistributed to my waist and upper back. I looked like a frog.I had no hips because my gluteus muscles were gone. I still don’t look the way I used to but it has gotten better.
Hello all. I am 6 months post cervical facet joint injections and am doing very poorly. I was wondering if anyone could point me towards information indicating that surgeons have found these crystals years following administration. I am looking for some literature on this but can’t seem to find any. I can find posts by Samantha on this site about it but that’s about it. Thanks.
During the epidural procedure the doctor hit nerves, which immediately affected (felt like two bolts of lightening) my left arm and left side of my body. I immediately told the doctor. He pulled the needle up, moved it, and proceeded with the injection. I felt the movement of the needle.
After completing the procedure, I was taken to the waiting/recovery room, with numerous other patients, The doctor dictated my personal information into his computer. After he finished, The doctor went back into the procedure room where another patient had been prepped for his injection.
While sitting at the kitchen table, speaking with my friend, the numbing agent began to wear off. As it began to wear off I began to experience significant pain. The pain continued to increase as the numbing wore off.
My friend called the facility as instructed in the discharge papers. She had difficulty reaching the necessary staff. The nursing staff in the procedure area instructed us to call his PA. Several attempts were made and we kept receiving her voice mail.
In the last conversation with his staff, I began to feel numbness in addition to the pain. As I stood at the end of my bed, I began to feel numbness from the waist down.
I was in my bedroom to try and relieve the pain. I tried laying down on my stomach and then my back. The pain increased. I went to the end of my bed and tried stretching my upper body.
When I began to feel the numbness, I immediately sat back down at the kitchen table. My friend was on the phone speaking with his staff. She explained the pain I was experiencing and his staff stated it was normal as the numbing agent was wearing off.
I told my friend I was feeling numb from the waist down. As I tried to stand up, I wasn’t able to use my legs. I told her to call 911. The staff member said, ” yes, call 911.” During which I slid onto the floor. My friend called 911 for an ambulance.
The paramedics had to pick me up off the floor and carry me to the stretcher. I was transported to one of the local Hospitals (never again).
While I was in one of the rooms for examination, I experienced horrible treatment from some of the staff. I became argumentative with the one physician, because she felt I was faking everything. (I was informed the next morning that she wanted to discharge me in the same condition I arrived in).
I requested to use the restroom. I was helped into a wheelchair and pushed to the bathroom. I attempted to urinate and wasn’t able to physically (I was numb from the bottom of my ribs down).
I attempted to get back into the wheelchair and slid onto the floor and began to cry. I could hear some staff discussing me being on the floor crying.
Two male staff members picked me up, put me in the wheelchair, wheeled me back to my examination room. They picked me up and placed me back on the gurnee with my pants and underwear still down to my knees. They left me like that. When one of the female nurses came in, they saw how they left my clothing and helped me pull them up.
No MRI was performed until late that evening. I was woken up at approximately 1am. During which I was informed they received the MRI tests results, I needed to have emergency critical surgery, and the neurosurgeon was currently on his way in.
The surgeon showed me the MRI, explained the test results, and what he needed to do during the surgery. I had developed a hematoma and it was pushing my spinal cord into my vertebrate. The surgeon had to cut off the bones on the outside of my vertebrate in order to get to the hematoma.
Either from the epidural or surgery, I developed 2 contagiou medication resistant staph infections. I had to have another surgery months later to clean out the infections. Although I had an open wound draining, no one tested for infection until immediately before the 2nd surgery. My kids had been exposed to these contagious infections.
The plastic surgeon discharged me from his practice one month later, when the last of the stitches were removed. He also locked the blood work results. The lab and general practitioner refused me copies of the results. They both said I had to go through the plastic surgeon.
I’m still experiencing pain, swelling and muscle weakness.
Did he use kenalog? If so I believe that is illegal now in this country? The fda has warnings against epidural use. If he used kenalog I would contact a attorney,the fda, the medical board etc I would not put it off. I am only making a suggestion on what I would do. My DR’s supervising physician told me to call a attorney but I had already waited to long and that was that 😦
NOTE: I AM A STROKE VICTIM–SINCE MY DEADLY SHOT–AND IT IS EASIER FOR ME TO WRITE IN CAPS.
MY DEAR ANNE, I AM SO SORRY, AND WE WILL NEVER KNOW HOW MANY LIVES HAVE BEEN DESTROYED BY THESE DEADLY INJECTIONS. IT HAS BEEN MORE THAN FIVE YEARS FOR ME, AND
I AM NOT SURE THAT I WILL EVER WALK AGAIN OR REGAIN THE USE OF MY RIGHT ARM. IT HAS DESTROYED OUR FAMILY IN THAT NOTHING WILL EVER BE THE SAME AGAIN. THE LAST TRAGEDY FOR US WAS THAT WE LOST OUR PRECIOUS OLD CATS, AND THAT BROKE OUR HEARTS. THEY WERE OUR LOVE AND SUPPORT FOR 15 YEARS. FORTUNATELY, MY HUSBAND TEACHES HISTORY FOR AN ONLINE UNIVERSITY FROM OUR HOME, SO HE IS THERE FOR ME ALWAYS.
STAY CLOSE TO THIS WONDERFUL GROUP…ALWAYS LEA
leamary@telus.net
Just checking in hope all of you are doing well as for me I’m 3 months away from my 6 year anniversary. As you know some things are a lot better others not so much still having lots of pain from nerve damage as well as pain from scarred fascia. I’m still seeing my p.t. and so still hopeful for a full recovery some day ha! Anyway hang in there everyone! And have a Happy summer!
Thanks AK Hoping everyone is coping also
Happy summer to you as well. I will be traveling all season long 🙂 It’s 2 month over 6 month for me, hang in there.
Hello, I am writing looking for some hope for my husband’s condition after receiving two kenalog injections in his wrists.Since the shots he has had severe insomnia, anxiety, depression, fatigue, muscle pain, weakness, temperature disregulation, vision problems, tachycardia, extreme weightloss. He had the shots 7 weeks ago and went from a perfectly healthy, active 40 year old to practically an invalid. I was wondering if anyone went through this and actually got better? If so, was it gradual or did it get better more suddenly? Did anyone have any luck with an endocrinologist? NO Doctor really believes us that the shot did this but they all admit there are side effects….I just want my husband back. My kids want their Father. I feel like he could handle all of the other side effects if he could just be active again and get some strength back. At this point he can barely go for a walk without feeling like hes going to pass out from exhaustion. Has anyone found any remedy to gain strength back?
I am 4 years out from having 3 kenalog epidurals and I was passing out and having all kinds of crazy heart racing and dizzy spells along with some other things and I was treated the same way by doctors. They are allowed to use drugs as they see fit so they can essentially do whatever they want so make sure you do research before agreeing to anything. I’m 4 years out now and I still have episodes of crazy heart racing and dizzy spells but I’ve learned how to prevent passing out and have found a job I can do from home because I don’t drive now after having a crazy episode while I was driving shortly after my epidurals. I’m not sure if I’ve just learned my limits and when to stop or if I’ve gotten somewhat better. They thought I was having mini strokes at first and I still have those episodes where I can’t make a sentence from the sensation of blood rushing to my head and I still have pulsatile tinnitus but the episodes are considerably less after 4 years. Kenalog and depo are designed to be long lasting and it definitely is. You learn to live with it after a while because that’s your only choice. I had 2 neurologist tell me their opinion was that my situation was caused by the kenalog but they would not testify in court… the FDA is a joke and only made Bristol Myers put a stronger warning label on the drug. Your only defense is asking for specific names of drugs they are wanting to use and do research before you agree to anything.
Bless your heart! My husband has had to deal with my severe symptoms for several years; he is wonderful. Kenalog has destroyed so many lives over the years, but no one seems to care. Please stay close…..love Lea
Hello, I am writing looking for some hope for my husband’s condition after receiving two kenalog injections in his wrists.Since the shots he has had severe insomnia, anxiety, depression, fatigue, muscle pain, weakness, temperature disregulation, vision problems, tachycardia, extreme weightloss. He had the shots 7 weeks ago and went from a perfectly healthy, active 40 year old to practically an invalid. I was wondering if anyone went through this and actually got better? If so, was it gradual or did it get better more suddenly? Did anyone have any luck with an endocrinologist? NO Doctor really believes us that the shot did this but they all admit there are side effects….I just want my husband back. My kids want their Father. I feel like he could handle all of the other side effects if he could just be active again and get some strength back. At this point he can barely go for a walk without feeling like hes going to pass out from exhaustion. Has anyone found any remedy to gain strength back?
Hi Britt,
I’m so sorry that your husband, you and your family are having to go through this. I’m a 34 year old male who was in the shape of my life before 4 Kenaog injections in May 2017 drastically changed everything. I’m still not 100%, but I can say I’m better. From my experience, your husband is in the worst of it now. Have you gone to any doctors or an endocrinologist yet? If not, I think that might be a good place to start to see if they can find anything and make sure nothing major is wrong.
For me, the first 2-3 months were the worst, but mostly because I did not know if I’d ever get better, and that is such an awful feeling. I can tell you that it should get better, but unfortunately it has to run its course. There are differing opinions on this site as to what exactly is going on and what is the cause of all the problems – is the drug still in the body, is it an adrenal problem, is it just side effects that gradually go away, etc. I’m still not sure, nor does any doctor I’ve talked to yet understand what is actually going on and what exactly happened. All doctors, including my very best friends who are doctors, look at me as if I’m crazy and say this can’t happen, that they’ve never seen it, and suggest that it is probably just all in my head – not the case. The best I’ve been able to get from the drug manufacturer is that yes, these symptoms can occur, but no we have no data on if and when they will go away.
I’m still seeking treatment as I still experience vision problems, inability to workout, lethargy, and just a general feeling of being “off” and not the same person as I was before. I went to multiple doctors/specialists, including an endocrinologist, and none felt the steroid could be the cause as my lab results all came back normal, but I am 100% sure it was, along with everyone else on this blog who unfortunately has gone through it firsthand. For me, the insomnia, anxiety, depression got much better after three months, and I felt the constant dizziness get better after 6 months. In the beginning, I was trying to workout during all of this in the hopes it would get the drug out of my system faster, but it often left me extra exhausted so I had to majorly cut back. Looking back, I’m not sure if that was the best strategy, as maybe I should have focused on resting my body.
Unfortunately, I don’t have the magic recipe for what to do right now, but in addition to taking him to the doctor/endocrinologist, all I can suggest is to keep letting him know that it will get better. He’ll need to know that and he’ll need your extra support while going through this awful ordeal. It makes me mad that people continually are injected with this poison every single day, but unfortunately lawyers don’t seem interested to take on such a case to try and end this from happening. I wish your family the best, and I hope he will get better in time. If you have any luck with any doctors/endocrinologists that give you any sort of explanation, please do keep me posted and I will do the same.
DI
HI Di
Thank you for responding. We see an endocrinologist next Friday but we see an internist this Friday and are hoping to get our endocrine moved up. Did you have your cortisol tested when you saw the endocrinologist? if so, did you do the various types of tests. I was told that the results can be different depending on t\what tests they perform. It seems all of these symptoms line up with adrenal insufficiency. I have a friend with Addison’s Disease and she has almost all of the same symptoms as my husband. I guess that is what we are starting with…In the beginning we thought he was having psychiatric issues because of the insomnia and anxiety, so they gave him medication to sleep and calm him. Now I am thinking the meds might be slowing his body from producing cortisol and compounding the problem.
I have found studies on adrenal insufficiency following GC injections and it seems that adrenal insufficiency can last up to a year after an injection but that doesn’t account for other physiologic and external factors. That seems to line up with what your experience has been. Thank you for all your advice and I will post following our appointments this week and next.
I have the exact same story as you and need hope can you email me please
mpulling44@gmail.com
DI are you still active on here
Britt I am so sorry to hear abt your husband. He could be in for a long miserable ride 😦 what he is going thru is what many of us have gone thru with these types of injections and your right abt the drs not admitting that it’s either the drug or administered wrong. Please file a complaint with the fda,pharmaceutical co , and the Dr as well as the medical board. We need to do this to get somebody to listen. Document all the side effects no matter how crazy or ridiculous they seem. That being said start his recovery now! Read all the comments here and use what works for him. I couldn’t do anything the first year. I am now two months away from six year mark and doing so much better I would say close to abt 85% it took several years to start seeing big changes. I still see a physical therapist abt once a month for fascial release, trigger point release etc I don’t think I could have recovered without it also deep tissue massage and lots of weight training when able and lots of healthy nutrition and supplements just try everything and don’t give up!!! This may take time and he may have days where he thinks he’ll never be the same but with time he’ll get there. You may want to get an attorney? If so have him visit this site so he can see how many others are being hurt by this drug. Good luck and just stay strong!!! God bless you all!
I agree with everything AK says. My wife, daughter, and I have all suffered the life changing side effects of Kenalog. I am 4 1/2 yrs out from my only injection and still feel some of the effects.My story is posted above, so I won’t repeat it here. It will take years for him to get back to a normal life….exercise is critical to recovery! This drug is poison and should not be on the market!
Britt, please tell your husband not to give up hope… While reading others posts here you will see that those who were athletic before injections seemed to start recovering sooner although for most it took several years those that were athletic etc did not recover as quickly and some not at all! Like Dick said as well as everyone here this drug is POISENESS!!! PERIOD!!! Drink a gallon if pure water a day, walk as much as he can, muscle does have memory but you have to get those nerves healed and firing. I went thru exactly what you are describing your husband is going thru. Like a lightening storm causing a train wreck! I walked and stood like Frankenstein for a very long time due to muscle and weight loss. All that being said there is hope he just has to muster up some strength to keep going and he may be one if the luckier ones that heal sooner. I just had to keep saying between tears and frustration. That this to shall pass a d thus drug and these drs were not going to destroy my life! Scew that! He is lucky to have a loving family to help him thru this and that can see he is not making anything up and that what’s happening to him is very real!!! I had to take a mild anti anxiety for a little while to keep from losing my mind I don’t take anything at all now other than vitamin’s, protein, creation and eat as clean as possible and exercise as much as I can and the first year wasn’t much at all so have do what he can. Good luck and keep checking in here because this will probably help him more than anything. Lots of support here. It just saddens me that we keep getting new people being g hurt from these drugs. When will they listen in this country????
Hi there are you still checking this site! Seems like many older posts. I had my one and only kenalog poison shot Aug of 21. Determined to get back to 100%! 58 year old very fit lifetime athlete and fitness person so this has been the worst 1.5 years of my life. Nutrition, exercise and supplements is key. Just such slow recovery. Please reach out if still active here
rmolsen1964@gmail
RO
Hi there are you still checking this site! Seems like many older posts. I had my one and only kenalog poison shot Aug of 21. Determined to get back to 100%! 58 year old very fit lifetime athlete and fitness person so this has been the worst 1.5 years of my life. Nutrition, exercise and supplements is key. Just such slow recovery. Please reach out
RO
Sorry for the typos I forgot to go back and correct ha!
Hi Britt,
The endocrinologist that I saw only did a morning cortisol level test along with an ACTH test. I believe both were simple blood tests done first thing in the morning after fasting. Both of my levels came back normal and I was told yes, the way I was feeling could be a result of the steroid and especially since I didn’t have a lot of body fat it may have hit me harder than most as I had four injections at once, and that hopefully I start to feel better soon. However, no treatment was given other than being told to give it time. I’m now receiving holistic treatment, in which the doctors ran a variety of tests, including a full hormone test where samples were taken at different intervals throughout the day. I’m anxiously awaiting those results, which should be in sometime in the next week. I will definitely keep you posted on what the results are. If you can, please do keep me posted as to what your doctors say. It would be great to hear if they are able to offer a form of treatment that works or could speed up the recovery process. I’ll be praying for him!
Best,
DI
Hi Britt,
Any updates on your husband’s doctor visits? I’m still waiting to consult with my doctor on my cortisol test results.
Best,
DI
Hi DI
At this point we have seen a million doctors. I’m still waiting on answers from all of the labs and tests. And will update if we find any diagnosis. At this point he still feels the same. Im sure our experience has been similar to most everyone on this site. He is still at a stage where he can not sit and focus, let alone type on a computer or look at a screen. I think it might help my husband to talk with someone who has been through what he is going through. I feel like you both were in a similar place before the dramatic series of events. If you would feel comfortable with that, could you email us at worldofkinder@yahoo.com? If not I totally understand. I’m really hoping the labs will give us some insight. I have been looking into treatment options for dozens of scenarios but we really dont know what the scenario is quite yet.
Thanks
Britt
Hi Britt, I had to wear sun glasses to watch TV or look at a computer screen. The pain in my eyes was unbearable and had to have curtains closed at all times. I also had to get one of those doughnuts to sit on as well. Please keep us informed on how he’s doing and your right about it being helpful for him to at least communicate with others who have gone through this or are still going thru it. Lots of support and understanding here. I could not have gotten through this without the support of the loving, caring people on this site.
My dear friends;
How do I register to get back into this wonderful group, please? Somehow I am not getting any mail. Could someone help to reregister me I miss everyone so much. Thank you with love always….lea
Hi Lea, I guess you must be on because I received your message. I haven’t heard anything from anyone in months I to have been wondering how Britt’s husband is doing as well as everyone else. Hope no news is good news 😉
Sorry for all post’. 17 months 1 injection kenolog triamcinolone still messed up waking up bad and hope my adrenal or what ever you call is wrong gets better. my doc said cushings syndrome like i could be going through from the shot. went to E/R last week and Doctor from vemont said yes the steroids kenolog triamcinolone cream will mess you up bad. why they give it. befor i got injected they said they should not hive it and acting strange to me about it. they made me wiat an hour to make a choice. so in vermont doctors ae saying its danger. i just want to recover . cant rewmember nothing so dont no if i will ever get back here. thanks every one
Hi ak’. a lot of people dying i think. i new a few suicides . sorry i said this but it may be tue. i Pray hope i don’t let my self give up and die. i just get sick of it being olone and loosing friends and family . i wont get out much to hard. plus i need to move wear there is lowe stress. how are you doing now?
my dear friend; I am still suffering from this deadly drug and I miss all of the dear people who gave me so much support. Please do not ever give up because we are still here and we will help to give you love and support. It has been a life of suffering for my husband and me because I had a massive stroke that was so destructive to our family. We face each day with hope. Please stay with this wonderful group…with love lea
I’ve been trying to reply but they’re not going thru so trying again.
Thanks LEA-AK “. SHARE LATER
Just sent another reply but not sure if it went thru maybe they’re to long ha! If they did get thru please let me know. Thanks
Yes AK ‘. not sleeping much and mind blank of things every one all ready says.
Dear AK,
I miss this group so much, and I wonder if you could help me to get back in to rejoin because I really need some support.
with love and support to you…Lea
Hi Lea, I’m not sure what is going on with the site this the first message I’ve seen in a long time. I wondered if someone blocked us somehow?
Hello everyone. Nobody’s blocked on the site. I’m still monitoring it and approve each new comment. There are less and less comment and visitors.
Hi zb, so glad the site is still up and running 🙂 I tried responding awhile back twice and my messages didn’t go thru so maybe it was something I did ha! I hope all are doing well and if any if you are reading this please respond. We would love to hear from you and find out how your doing 🙂 I still have some symptoms that I think I will always have to live with but all in all things are better and life goes on… That being said those drugs were life changing and the FDA as well as Drs who use them need to do the whole world a favor and do they’re research before administering them. They have killed some and destroyed the lives of others. I feel they think this is the new penicillin or Prozac, they’re using it for every little thing that goes wrong.
Dear AK,
Thank you for posting, and you are correct in that the FDA could not care less about our well-being. This site was very active when I had the deadly shot….I smell a RAT! Someone is messing with our lives…what thinks thee?
Stay close.….with hope….Lea
Dear ZB:
Thank you for responding. How are doing? I feel better now that you are still posting. My David told all of you that I had a massive stroke and we wonder if that deadly shot could have caused it…if it did cause my stroke, I wonder how many other people have suffered the same horrific event! Please, if anyone has had a stroke, could you let us know. This has been the most painful time of my life.
Where have our angels gone? Please, could you all start posting again to this wonderful group because our words are our strength….
With much affection….Lea
MY DEAR FRIENDS;
THIS IS SO TRAGIC, HOW COULD THEY TAKE OUR SUPPORT AWAY, THEY ARE SO AFRAID THAT WE WILL SUE THEM, AND THEY SHOULD BE.
STAY CLOSE,,,,,ALWAYS LEA
I’m here,still sick,been 10 yrs nearly now. Have gut problems,head problems,ears,tinnitus with pain and pressure, ENT havnt a clue and won’t help ,says I’m not dying so wont treat me . FK all of them .Still no diagnosis but at least admit a medical benefit as blsht gov red tape wont employ somone with all these symptoms.
And their still poisoning people and playing the lies and deceit after all these years, lowest of the low.
Bless you all ,and hello sorry i havnt posted ,soo much to say on this and many conformations from others.
My dear Robbie:
Thank you for checking in because we have been so worried about you. I agree the government could not care less about us. This is all about money, power and control. How is your mother? She was so worried about you, and I would love to restore contact with her again.
Stay close and please continue to post here to let us know how you are doing.
Much love and hope…Lea
Dear ZB,
How are you doing? Robbie has not responded to me, but I hope that he will.
I would like to tell you about a TV program that I watched the other day. “American Greed” is on CNBC all the time. I watched an episode titled “Painful Greed Turns Deadly” It was about a non-sterile and contaminated drug compounding company (NECC) in Massachusetts. One of the segments was about someone who died from receiving contaminated drugs, one of which was Depo-Medrol. because they have this program on each Monday. The owner went to jail for nine years, but he should have been sent for life. If you can watch this episode, please tell me what you think.
With love and respect…Lea and David
Hi lea, i recieved my jnjections at the exact time all that happened and i had all the symptoms except kidney failure. The state where i live put out a notice to all drs to warn their patients and to have them go to the emergency room right away if they had any of the symptoms after recieving these types of injections of course i didnt hear about that until 2 months after… and had i died nobody would have ever known why… which makes me wonder just how many have??? Im still fighting complications from all the soft tissue/nerve damage and who knows if i will get 100% ? August will be 8 years out for me and my P.T and i just keep trudgeing along and plugging away at it .. i hope this new year will make some changes and that the FDA will at least give us some respect and look into this before more people have to suffer or die from these big pharma drug dealers!!!
Dear AK:
Thank you for responding…you are an angel. We all owe you so much for allowing us to be able to share our health problems in a safe place. I wish that we could help you in some way; however, the only way is to be here if should ever need us.
When I had the massive stroke, it destroyed our lives. David was so afraid that I would die, but when I woke up from being in a coma for three weeks he was so happy because all he would havehad would have been our precious little cats….this was a miracle for him…I am crying while I write this. We are trying to put our lives back together. The medical bills took us down, but we are slowly coming back.
Thank you again AK for being here for us…sending love and hope…Lea and David
Dear lea, no… thank you! I really dont know what i would have done without you and everyone else on this site… I am so grateful it was here otherwise i would have thought i was losing my mind and their wouldnt have been any hope. I dont know any of you personally but i love you all ! And im so sorry for your families suffering throughout all of this. Some of you have suffered so much more and it just breaks my heart. I just hold on to the hope that some day somebody will listen.
My Dear AK:
Thank you for your loving messages…when David read them to me, I cried. We never know who will respond the way that you did, and it makes me happy to know that there are still wonderful people who care.
I am not sorry that I wrote to you instead of ZB because his response would have been like yours. We love him for being so strong while suffering from the same poison that most all of us had injected into our bodies. Our world is such a bad place right now, but if we all continue to stay close in this group…we can make our lives better…LOVE can change the world. I wonder where the other angels who were here posting have gone because it would be wonderful if they started posting again. We need each other and our wish is that they are happy.
We both send so much love to every one of them….
With love…Lea and David
David and lea you are so right… all we need is love and i really hope some of the others will come back and check in as well, just so we know how theyre doing. I feel i owe it to others who are suffering to be here as you were and still are here for me. Love and prayers to all of you.
my Dearest friends:
We are at war with this deadly virus here in Canada, and we are afraid for the whole world. I wonder where this virus really came from…we smell a RAT. Stay close, and know that we will be here for all of you…love always…Lea and David
I think it was zb that started this site … i hope im not mistaken… but who ever it was i know we are all grateful and so happy it is still up and going. Its the most informative site on the internet on the dangers of these powerful drugs. I hope we can all continue to support one another and Lea you have done a lot for me already as well as others just by sharing your experience strength and hope with us all. I am so sorry that you and your husband have lost so much i just pray that someday it will all come back to you both 40 fold… so much love being sent your way.
Hello Lea and everyone else,
Yes, I started this site in sheer desperation back in 2012 when I was really suffering from the side effects of a kenalog shot. I was looking for answers, explanations and possible solutions. Like others, this experience changed my life forever.
I never expected so many visitors in the first few years, I think we made a difference, at least I feel so. In the last couple of years, the number of visitors plummeted, probably because search engine doesn’t crawl such blogs anymore due to their change of policies.
Anyhow, I’m still here, approving comments but have no plans for the future of the site. It will be up and running while this service is free.
Wishing every new and old members a quick recovery and good health.
ZB
Hi everyone,
You were my lifeline for at least two/three years after a steroid shot in 2012. I’m in the UK. My side effects were mainly psychiatric and utterly devastating. I wrote on here a few times but mainly read messages and knew I was not alone. I am extremely fortunate as I have made a very good recovery, it took at least three years to be anywhere near ok though. I just want to say a huge thank you to you all and to give some hope to those still fighting.
I tell everyone about what happened to me in the hope it could save someone else from what we’ve all experienced.
I wish you all peace and health.
Emily x
ZB, we are all so grateful that you did start this site, I know most of us would have been so lost had you not. God bless you!
Emily, so glad to hear your in recovery and doing better. Unfortunatley it does take a long time to really start feeling better and noticing the changes. The hard part for me has been the going back and forth feeling like im getting better then everything collapsing again, very frustrating and depressing but i time it does get better. Thank you for still Checking and shareing your experience , strength and hope as well… love and light to you 😉
My Dear Emily:
Thank you for your welcome note because it gave me hope. I had my deadly injection in 2011, and we are sure that it caused the massive stroke four years ago, leaving me paralyzed on my right side. My David has been by my side ever since. He does most everything for me; he even went to the pet store and brought me two little kittens. They have helped to save my life, and we both love them so much.
My Darling Emily, please stay close and know that we all care…Lea and David
thank you for writing and i will write more later…we all love you…stay close lea and davd…kitties too.
To our dearest ZB:
On the day that you posted your first cry for help, my life changed, and I told David that we had an angel who was willing to give us support. Even though you were sick from the deadly injection, you were our first glimmer of hope. I wish you could get well and enjoy your life again. We just found out that our son had been injected with the same contaminated batch and he developed fungal meningitis. He is struggling every day; however, he is able to work a few days a week, and at least he has us close by to love him.
With much love to you and your family….Lea and David
DEAR ZB;
OUR LIVES ARE REALLY A MESS, WE WILL GET THROUGH THIS VIRUS BY BEING CAREFUL. WE HOPE THAT YOU ARE DOING BETTER.
MUCH LOVE TO YOU AND YOUR FAMILY ALWAYS LEA AND DAVID
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Lea and David……its mo here, robbies mum. He is still suffering dreadfully, and i do not know, after 10 years of watching him go through this hell, well i do not know if it is ever going to be over. I am sorry we have not been in touch, i want so to hear you again. We have moved several times….stress, illness, pain and worry.We are now in the south island of new zealand, near the top of the island on the west coast, a place called karamea.I try to be happy, i rescue cats, and i pray.I can’t bear to be far away from rob, i just worry so much.I am sure he gets sick of me being …..well, over protective of him, but what mother would be different?. I can tell you of only one thing that really helps….PRAYER. The Lord Jesus Christ has kept me sane…..i do not belong to any religion, but have always believed in Him, i am now a recluse, just want to be near enough to rob to be there for him on the days that are so bad that he can break down. Soon this evil system will be over, look at that world….whats happening…..its all foretold. It is the ONE thing we can have faith and hope in, Gods promise, His love, His understanding of what rob and all of you/us are going through…. HE KNOWS. and He is going to put things right, one day, and i believe it will not be long, all your pain will vanish, as will all the tears, all the anguish………just believe in Him and pray to Him, he will comfort you, I promise. I love you, you are not alone, none of you are alone, hang on. He will rescue us. Love Mo.
My darling Mo, we have been so worried about you and your darling son. Thank you for letting us know that you are both here. I had a massive stroke back in 2015, and our lives are very stressful because of it; however, we are coping. We are so sorry that Robbie is still suffering from that poison. I know that all our angels in this precious group will be praying for you both.
My David has diabetes, and I worry about him so much. He is still teaching at the university and taking care of me…. I love him so much. We adopted two little kittens from the fires in California; they keep us happy.
Do not forget that we love you both…and we are sure that your prayers will be answered.
Love always…Lea and David…kitties, too. Please stay close….
Is this still an active site?
Its been a 6 month nightmare for me. I have floaters in my eyes. The doc I went to was aggressive and pushed this on me. I really don’t believe in any shots I am so devastated that I allowed someone to hurt my beautiful life. I wanted to see if anyone else has experienced walking difficulty or standing? I can hardly get out of bed and when I push myself I can’t stand long. My heart races and beats over 100 and I get out of breath. Standing in the shower takes everything out of me. Trying to walk is a total struggle. My legs feel like they will give out. I was so happy and healthy before this. I use to smile nonstop and barely smile now. No doc in the states will acknowledge this horrible drug.
Also, I have had severe insomnia from the start. Does anyone have ongoing insomnia? My eating is awful as well. I am worried this may have caused MS? I just don’t know anymore. Love to you all.
Unfortunately, those are very typical symptoms of the adverse reactions we all experienced. The racing heart, insomnia, fatigue, unexplained anxiety is debilitating. No doctor will acknowledge your condition. It will get better. For some it takes weeks, for others longer. You should be monitoring your blood glucose levels, cortisone shots tend to mess up your metabolism too. I hope you get well soon.
OH, ZB, WHERE HAS YOUR BEAUTIFUL GROUP GONE. I HAVE SEARCHED FOR THE GROUP, AND IT SEEMS LIKE SOMEONE IS TRYING TO GET RID OF US. I HOPETHAT YOU ARE FEELING A BIT BETTER. SENDING TONSOF LOVE LEILA AND DAVID EVANS
I am so sorry your going through thus. Your story sounds a lot like mine. I used to post here years ago. I’m not sure if the old posts are still available but if they are look mine up. You will get so much support here. I am 11 years out from I vile of kenalog 40 injected I to 2 different places in my glutes. After 3 days I had no muscles at all…. I was an avid gym buff. I will say I am recovering but it has been a very long hard journey. You cannot give up. No matter what you keep making yourself walk. Get a good physical therapist. Screw the Dr’s they don’t believe this and will not listen. Get massages, try everything!!! Although I regained strength I had no muscle. Att 11years out from nightmare I am just now truly feeling my hamstrings and glutes returning. I noticed little changes about every 4 months and that gave me enough hope to keep going. I will sY this again. A celebrity will have to be disfigured or die before these Dr’s listen… again I’m so sorry this happened to you and please fight hard. It will get better in time. I’m not 100% and will not likely ever be but ots better. Do t give up hope.
Jo, I have felt the same, I had 4 trigger point injections in October (18th) in my back (for knots in my muscles) and my beautiful life with my 10 year old son has also been devastated. I have alot more to say, but someone else wound up needing to take care of him because I was simply too sick. I bled for 6 weeks straight, lost 20 lbs in 5 weeks (still can’t get the weight back on and actually just lost another 2 lbs because of nausea/anxiety that never left). The worst is the insomnia, which has been so oppressive… I wound up checking myself into a mental hospital, in January, desperate for sleep. They got me to sleep only 2 out of the 7 nights I was there, trying antipsychotics, antidepressants, a benzo (Ativan) and melatonin. I am still struggling to sleep, despite taking Ativan daily at this point (and at night). The sad thing is, without the Ativan, no sleep is a guarantee for me. Seizures too, since I did get seizures in my sleep for years (mild ones and never on any med for it) but since this started I have had 9 nocturnal seizures, all of them from sleep deprivation/attempting to take less Ativan. I had no idea it was such an addictive drug but without it I wouldn’t be functioning (never took it in my life). I also take Zofran for the nausea at this point. In addition to the other side effects I’ve had an ovarian cyst that burst, GI issues (SIBO?), hair loss, crippling anxiety, depression, and suicidal ideations that just refuse to go. I’m sure I’m leaving out other side effects (muscle twitches, etc) but… it’s been 5 months now and I’m just still waiting to not feel terrified every single day. It’s like being a turtle with no shell, just terrified. I never had anxiety like this in my life. I guess I just need a ray of hope that the rest of my life won’t be like this. It’s been soul crushingly depressing and countless dr visits to my primary care, endo, gyno, neuro, gastro (plus ER, hospital, etc) have all proven fruitless, as no one has ever heard of anything like this. It’s discouraging beyond belief and every day I wake up disappointed to still be here in this nightmare.
im also suffering from insomnia email me at mpulling44@gmail.com
Jo did you make a recovery
DEAR ZB, I AM STILLSICK FROM THE SHOT THAT I HAD IN DECEMBER 2012, AND IT SEEMS TO HAVE BEEN HIDDEN FROM THE WORLD. IT WAS ON AMERICAN GREED SEVERAL YEARS AGO AND THEN NOTHING…HOT POTATO.
Has anyone ever taken Ativan to help? I have tried very low doses and it seems to have made things worse…I am so confused all the time.
DEAR FRIEND, THANK YOU FOR WRITING.I HAVE MS TOO AND I HAD AMASSIVE STROKE SIX YEARS AGO. WE KNOW THAT ARE HEALTH PROBLEMS ARE CAUSED BY THAT SHOT FROM HELL HD THOSE DEADLY BREAST IMLANTS IMPLANTED INTO MY BODY AFTER CANCER,AND THIS LED ME TO HAVING THE DEADLY SHOT FOR OSTEOPORES. A DOCTOR WHO GAVE THIS SHOT TO A WOMEN WHO DIED, HE WAS FRIGHTENED, BECAUE THE HUSBAND WAS SUEING HIM FOR MILLIONS. HE WENT OUT TO A PRIVATE PLACE, AND SHOT HIM SELF….MORE LATER, LOVE YOU LEILA
I tried something close and got off it fast. I would suggest getting off of it and going to something natural to calm. What worked best for me was 60 mg of lavender at night.
how are you now Jo
Jo you still active on here
Jo how are you now.. did your confusion subside